In January of 2010  I was diagnosed with Ehlers Danlos Syndrome after a discouraging and difficult 10 year journey to finally NAME all my strange symptoms. Since then I’ve been trying to find balance; I am a middle school special education teacher, a wife, a mother, a Christian, a friend, …

Hi! I am Claudia, from Romania. I’m 17, 158 cm, 55kg. I had a happy childhood with minor, but frequent, health problems. My story started 3 years ago. I was operated for appendicitis in March. In April I woke up in a morning with a pain on the left knee.  It was …

I have had endometriosis since I was a teenager. I was diagnosed at 21 but suffered before then. I tried Birth Control Pills, several different injections, and had three laparoscopy surgeries and to no avail – nothing helped. Finally two years ago when I turned 40 I treated myself to …

Hi Everyone, This weekend I did what the average teenager does over the weekend. I went to a surprise 18th birthday party for a friend of mine, and then the next day I went shopping for a prom dress with my friends. While I enjoyed being able to enjoy the ”normal” teen life, …

My name is Tonya, I am a 42 year old wife and mother of two grown daughters. I have been in pain since I was about 13, when I was diagnosed with Juvenile Rheumatoid Arthritis. At that time it only affected my knees. Then in my early twenties I was …

My name is Kelli. I am 17 years old and I am a junior in high school. I was diagnosed with fibromyalgia in April 2010. It was blessing as well as a curse. A blessing in the sort that I knew what was wrong with me. A curse in the …

In December 2002, I was diagnosis with epilepsy. After doing an EEG, the epilepsy was determined as Begin Rolandic epilepsy. My seizures were under control through medication and chiropractic treatments. After a change in neurologists, another MRI was requested in February 2005. At this time, they found an abnormality (no size was defined), …

The Kaleidoscope of Life As many others with ankylosing spondylitis, I’ve become passionate about helping raise awareness. It’s my hope (our hope) that future generations will receive early diagnosis and treatment before permanent damage is done to the body, less pain, and better yet … a cure. Four years ago my stress levels …

Hi my name is Jasimine and I am 16. I am a Hodgkin’s Lymphoma survivor. I found out I had cancer in Feb of 08. I went through 9 rounds of chemo in 9 months on 3 different regiments. After the chemo they told me and my mom that the …

My story is not so much different to the millions of other stories out there. I used to think I just ‘got lucky’ in my battle. Until a wonderful friend pointed out the words of a rather larger than life character, Margaret Thatcher. “I wasn’t lucky. I deserved it.” – …