I don’t think I’ll ever forget how my diagnoses came about. I thought it was just a routine follow up I was having with my Orthopedic Surgeon concerning my second right shoulder surgery. Then, I mention to my doctor about chronic jaw pain I’ve been having and how I’ve already …

On October 4, 2010 I was given my most difficult challenge yet. I was diagnosed with Hodgkin’s Lymphoma (Stage 1). I should also mention that this also happened to be the fall of my senior year of college! My schooling has always been a number one priority, so being dealt …

“We’re only here (on Earth) for a little while…take this (Plaquenil) and come back in three months.” This is what I heard after a year of testing, x-rays, blood work, CAT scans, poking and prodding, finally leading to the diagnosis of RA aka rheumatoid arthritis. Living in a rural community, resources …

I grew up in Vermont. In May 1985 I was 10 yrs old. It was the end of the school year. We had what was called field day. All the kids had to be outside and they had sports, activities, a bbq, and even a walk/run thru the woods. In …

I suppose a good place to start is the beginning. I started my period on January tenth (yes I remember the date, don’t you?) when I was 13 years old. It was painful and heavy but it didn’t last long. I thought it would be easy but I was wrong. …

Well, when i was 10 my grandma was diagnosed with Non-Hodgkin’s Lymphoma. It was a sad moment when we heard that because the doctors said that it couldn’t be treated. We gave her treatment anyway. After awhile the cancer was making her lose her hair so she wore hats all …

When I was 22 months old, my parents were in the middle of a fight to find out what was wrong with their daughter. My mom (my fight-like-a-girl role model!) visited doctor after doctor and endured multiple misdiagnosis’ before finally hearing the word “cystinosis”. When she and my dad looked …

Hello ladies, I am new to the group and thought I would share my story. Mine is a bit different than a lot of the other stories. Growing up I had no problems with my periods, they weren’t that heavy and tylenol would take care of the cramping. In 2005, …

My First Triathlon…. an emotional, exhilarating and downright terrifying experience! 32 years old…3 knee surgeries…1 collarbone surgery….1 broken jaw…1 horrible forearm  reconstruction due to dog bite… 1 bum shoulder…plantar fascitis…and a foot injury. Oh yeah, and a very recent Breast Cancer survivor. These were most of the ’cards’ stacked against me when …

My name is Morgan and I have a disease. It is true and sometimes a little hard to let the word “disease” slip out of my mouth. The disease is Endometriosis. I have suffered for 9 years, beginning at age 13, and have been diagnosed for 9 months, at age 19. I …