Hi, I’m Hannah. I’m 13 and I was diagnosed with hyper mobile EDS the summer before I started middle school. It was really scary at first. How can I keep up with classes? How can I have a social life with a serious disease like this? It’s still scary but …
Read More »Monthly Archives: April 2014
Kaitlyn’s Story (Endometriosis)
Ever since my first period at 12 years old, I have had an awful experience. It began with awful cramps and then progressed to back pain. My first trip to the doctor was disheartening as I was told my periods would regulate themselves. After two years of cramps and three …
Read More »Chloe’s Story (Lupus)
Last year when I had just turned 15, I had been through a year filled with the biggest twists and turns I had ever had in my life. I had taken a trip to Colorado for a youth leadership conference. When I got back I was very stressed from the …
Read More »Jacki’s Story (Multiple Sclerosis)
Today is my nine year anniversary that I received my diagnosis of multiple sclerosis. It was a such a long journey to get to that point, taking more than ten years to figure it out. After so many years of strange happenings, it was good to get a diagnosis and …
Read More »Elizabeth’s Story (Endometriosis, PCOS)
When I was thirteen I got my period. I was excited because all my friends had gotten theirs already. It was light and lasted three days. I was happy to tell my friends about it. But then I didn’t have it again for six months. When I finally got it …
Read More »Kimberly’s Story (Carcinoid Cancer)
Hi my name is Kimberly Smith, in the year of 2009 I had been sick for sometime.I had a gastroenterologist diagnose me with IBS and prescribed me medications. I was getting sicker and the medications were no longer working. I was losing weight, had bad painful diarrhea attacks suddenly, and I …
Read More »Denise’s Story (MCTD)
My story began in 1993. Out of the blue, I had an attack of Raynaud’s. It was so painful! Now to fast forward the story, for 14 years, my internist blamed all my symptoms on my weight, stress, poor diet, etc. It came down to one day in his office …
Read More »Lisa’s Fight Like a Girl Story (Hypothyroidism)
27 years ago I was diagnosed with hypothyroidism. I never knew how much the thyroid gland could control your whole being. Besides the sudden weight gain, the dry skin, the hair loss, being tired with no energy, it can cause other medical conditions. I went into early menopause, suffer from …
Read More »Melissa’s Fight Like a Girl Story (Synovial Sarcoma)
My story starts in 2011. I was working and noticed pain constantly in my left groin and hip. I would lose feeling at times and almost fall. I kept going to the doctors. I was told I pulled something or I had bursitis in my hip. As time went on …
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