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Monthly Archives: May 2013

Tahnie’s Story (Cystinosis)

Tahnie's Story (Cystinosis)LR

When I was 16-months-old, on the cusp of toddler-hood, doctors told my mother and father that I would not live to see my 10th birthday. I was diagnosed with cystinosis, a condition so incredibly rare, that the majority of doctors have never ever heard of it, let alone have any …

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