I went to visit two heart kids the other day at the hospital. My mom and I make an effort to go and visit the kids and their families whenever we can because we know how much it meant to us when people would come to comfort us when we …

I had a strained relationship with hope before my wife was diagnosed with cancer. To me, hope was a high waiting for a low, a fix with a nasty flipside. Far from the precious entity exalted by legions of poets and philosophers, hope was just another coordinate on the pain/pleasure …

I don’t look sick. Often, I don’t act it either. “I’m okay” or “I’m fine” are common responses of mine. It’s easier for me to block out what I can of this disease than to focus on what’s wrong with me. That’s why it’s also so hard for me to …

Hi, my name is Emily and I have had epilepsy for 21 years of my life. The first time I had a seizure I was in 2nd grade and had no idea what was happening. As the years went by and I became an adult, the seizures kept on getting worse …

One Summer evening I was entertaining the kids with different games to tire them out. I came across an oldie but a goodie. We have all heard, danced & chanted along with this wonderful song as a child. Head, shoulders, knees and toes. As a child we do the movements …

I’m positive that I am not the only one who feels pain differences depending on the weather around me. Winter is a particularly hard season, as the weather here gets terrifyingly cold.  My joints just seize up, my temperature regulation becomes a problem, and I just want to spend the …

Hey, I’m Steph. At the age of 16 I was like any other girl. I had a great group of friends, was attending my 12th year at school, and was going out every weekend. This all changed the night before my first year 12 exam. I started feeling sick so …

It all started with tingling in my right hand. I just assumed that it was from all of the heavy lifting. But as time went on, it went down my right arm. So then I thought ok, carpal tunnel, so I started wearing the braces and continued working. My right …

Hello my friends! I am writing this next article (finally, I know) on needing a transplant because it is a question I get often, usually after I have scared someone with liver disease by telling my story. (whoa Nelly, hold your horses, I was sick for many years before being …

I have been a Diabetic since I was thirteen MONTHS old. People always look at me and then go “did you say Months?” I was an infant. I went into a coma for seven days. No one thought I would make it. There were dozens of hospitalizations over the years …