December 1988, the Friday night after Christmas. I was excited about going out with my friends to Tully’s, the local Bar and Grill. I put on the beautiful Gold satin blouse along with my black pants my mom gave me for Christmas. I was sitting at a booth window which faced the parking …
Read More »Monthly Archives: October 2010
I Am A Spoonie! Are You?
Are YOU a spoonie? Come and find out! The great thing about "The Spoon Theory" is that it isn't solely designated for individuals living with lupus. It can also relate to just about any illness from fibromyalgia, to CFS (Chronic Fatigue Syndrome), and even cancer. It pertains to just about any "invisible illness".
Read More »The Liver Girl’s Story
Hey Guys n Dolls! I realized that in these few months of writing I never properly introduced myself. (This realization came to me because of one of FLAGC newest features “Power Stories” where you can tell everyone your story… Awesome feature BTW) So I figured you guys might want to …
Read More »Fall Fitness
Change is inevitable as we (reluctantly, if summer lovers) move into the fall season. In addition to the changing color of the leaves, is the changing dynamic of our lives. This inescapable change in nature can have a direct effect on health and fitness if not prepared. Without the extended, …
Read More »Ignorance and Insensitivity Where Do You Draw the Line?
(This blog entry is a fan picked topic…thank you Nicole Bergreen!) Nicole, had shared with me that during her most recent hospitalization, (#7 within 8 months) she had a CNA at the hospital tell her that if she believed in God and prayed hard enough her POTS and EDS would …
Read More »A New Way To Detect Parkinson’s Disease Early
A person with Parkinson’s disease, a degenerative disease that causes problems with movement and speech, often has characteristic signs and symptoms. These include a tremor at rest, rigidity, unstable posture, slow movements, hesitant speech, and a mask-like facial expression. But these are late symptoms of the disease – and often …
Read More »Remember the Time…
It’s been 2 months since I finished chemo, and it’s beginning to seem like a distant memory. It’s strange looking back and remembering that every 2 weeks I had to go for chemo, and that every week I’d have a blood test. And what about the fact that I used to have …
Read More »Alyssa’s Fight Like A Girl Story (Lupus)
Hello Fight Like A Girl Club! My name is Alyssa and I have Systemic Lupus Erythematosus. I am 14 years old and a freshman in high school. I was diagnosed 6 years ago by my rheumatologist and have since been battling with lupus. Lupus is a chronic disease in which your immune …
Read More »Coping with Hair Loss during Chemotherapy
After being diagnosed with non-Hodgkins lymphoma, one of the most difficult things after hearing that I had cancer was being told I would lose my hair during treatment. I know it’s vain – hair doesn’t really matter, but looking healthy is something I’d taken for granted. When the time came, …
Read More »Tracy’s Fight Like A Girl Story (RSD)
My story begins in 2001 when I went to the ER for kidney stones. The IV I had did something crazy and I now have reflex sympathetic dystrophy. Since then, I have also been diagnosed with ankylosing spondylitis, fibromyalgia, autoimmune hypothyroidism with adrenal fatigue, as well as parry-romberg syndrome. I have started a …
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