Let’s Get Real

Nov
14
2010
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Lately, I’ve been trying to figure out ways to bring about more awareness about Rheumatoid Arthritis. By awareness, I mean making people aware of the facts surrounding this disease and erasing some misconceptions. So today I want to present a little list of Myths vs. Facts. Myth: RA is what my grandmother has. Her knees really bother her when it rains. Fact: This misconception is one of the many reasons those of us fighting for awareness want the A-word taken out of the name. I’m sure her knees do bother her when it rains. Almost everyone is affected by arthritis as they get older. The difference is that osteoarthritis, which is what most of our grandparents deal with, only affects that joint. It comes with age as the cartilage in the joint wears thin. Rheumatoid Arthritis, however, is a systemic disease. It causes extreme fatigue, painful swelling of the synovial lining in joints throughout the body, and significantly raises the risk of heart disease in patients. Myth: If … [Read more...]

The End of the Beginning

Sep
30
2010
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So here’s the rest of my story. Or at least the rest of the beginning of my story. The Monday following Thanksgiving in 2008 I called my doctor for the referral to a rheumatologist. When they called me back they said they had made me an appointment. In January. I knew there was no way I could wait that long. At that point I could barely walk. It was all I could do to pick Avery up out of his crib. So I called every rheumatologist in the area until I found one that could see me the very next week. At my first appointment with the rheumatologist, she took note of my symptoms - morning stiffness that lasted for hours, pain and swelling in almost every joint, fatigue, etc. She ordered blood work and X-rays of my hands, feet, knees, and hips. I went back a week later, on December 18, 2008, and heard those dreaded words. Rheumatoid Arthritis. Sero-negative RA, to be exact, which simply means that my blood does not show a rheumatoid factor. Turns out a lot of RA patients don’t have … [Read more...]