Head, Shoulders, Knees…and Toes?

Aug
31
2011
girls-dancing

One Summer evening I was entertaining the kids with different games to tire them out. I came across an oldie but a goodie. We have all heard, danced & chanted along with this wonderful song as a child. Head, shoulders, knees and toes. As a child we do the movements with so much enthusiasm. The giggles that came from the kids throughout each new movement was such a beautiful sound. Each time they moved on to the next phrase the silliness would increase. I look at these words now as a person with Ankylosing Spondylitis and realize the song takes on a new meaning. It's strange how easily I can relate it to my AS. So many unrelated ailments and yet, in the end, they come back to this chronic illness I fight daily. So let's put on our dancing shoes and see how AS moves to this children's song. Head, shoulders, knees and toes, knees and toes. And eyes and ears and mouth and nose. Head, shoulders knees and toes, knees and toes. Head - Can I even move my head today? My neck is so … [Read more...]

Kayleigh’s Fight Like A Girl Story (Mixed Connective Tissue Disease)

Mar
04
2011
Kayleigh MCTD LR

Well, for about half my life, I had been feeling a lot of joint pain. It mostly started with my knees at first. I thought maybe I had just injured them in some way. As time progressed I began having knee and back pain. I got older and began to gain weight, so that was the go-to reason for my pain for everyone (doctors, friends, family). People told me if I would just lose weight, everything would get better. I knew this couldn't be the end all be all, sure my weight didn't help, but I just couldn't beleive my weight was the cause of everything. But I just went on with life. Well, recently (specifically almost right at the start of 2011), I began experiencing much more pain all at once. My back hurt, my wrists, knees, fingers, ankles, they all hurt. This wasn't just any hurt, this was rather debilitating pain. I needed help getting up, walking, sitting, and I couldn't even bend down or move far enough to lift the toilet lid for myself! Luckily, I had my fiance there to help me … [Read more...]

Bye Bye Thyroid!

Feb
18
2011
Thyroid Cancer Surgery

One week ago, I had the second half of my thyroid removed. This leaves me on medication for the rest of my life. I am also taking calcium tablets as my levels dropped in hospital, so I'm having them rechecked next week. I had a meltdown in hospital on Sunday. I haven’t had a huge amount over the last year, but I have had a couple. I’m just done. I’ve got no fight left anymore. I can’t do it. I’m done. I can’t bear the thought of going through the radio-iodine treatment and being in hospital in isolation, and then being away from my little boy for some weeks after. So I’m talking to my consultant when I see him and telling him I’m not having it done yet. I spoke to my key-worker about this on Monday and he said that I won’t be the first person who has chosen to do that. I just want some life for a bit. I want to have another baby, I don’t want to be away from my son any more. I’ve been in hospital enough over the last year and it’s unsettling for … [Read more...]