Hi my name is Joyce and I’m 33 years old. I was diagnosed with Alport syndrome when I was 21. My blood pressure was really high so I went in to have a check up. That’s when I found out I was at end stage renal failure. They put my …
Read More »Melinda’s Fight Like a Girl Story (Kidney Failure)
My name is Melinda, I’m a wife and mother. I discovered I had kidney failure in the year of 2007. I was tired and sick all the time. One night while my husband was out of town working, I had bad stomach pain. I couldn’t handle it so I went …
Read More »Jessica’s Story (Cystinosis)
When I was 22 months old, my parents were in the middle of a fight to find out what was wrong with their daughter. My mom (my fight-like-a-girl role model!) visited doctor after doctor and endured multiple misdiagnosis’ before finally hearing the word “cystinosis”. When she and my dad looked …
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