Fibromyalgia and the Change of Seasons

Aug
25
2011
Fibromyalgia and the Four Seasons

I'm positive that I am not the only one who feels pain differences depending on the weather around me. Winter is a particularly hard season, as the weather here gets terrifyingly cold.  My joints just seize up, my temperature regulation becomes a problem, and I just want to spend the entire time in bed, hibernating like a bear!  Sadly, I can't do that without feeling terribly unambitious.  The heating pad definitely plays a high role in the winter, in addition to the pain medication I own. The rain is another problem.  My body ALWAYS lets me know when rain is coming.  I can feel it everywhere - in my joints, in my muscles, and even in the slightest shift of air temperature.  There is rarely a rainy day where I feel like leaving the house; instead, my worst days are usually the rainy days.  Definitely the perfect time to curl up and zone out to a simple television show in the hopes of not moving and hurting. I wish I could say that the summer works out much better for … [Read more...]

Tammy’s Fight Like a Girl Story (Fibromyalgia)

Aug
10
2011
Tammy's Story (Fibromyalgia)

Hi, I'm 46, soon to be 47 on July 31. I was battling massive pain throughout my body and saw many doctors in 2003 and 2004. Finally, I found out I have Fibromyalgia. I was taken off work in 2003 and filed for disability.  I fought until I finally got a Lawyer in 2008. I won my case in 2009. Fighting this disease is hard but I do what I can. In 2010, on April 25th, I had gastric bypass. Now in June 2011 I am down 160 lbs. From meds and just unable to get around, my weight had gotten up to 402. Wow, what a change! I still have Fibromyalgia but it’s easier to get around, when I can. I just take one day at a time and pray every day that we will get cures for these diseases. We can go to the moon so what's the deal. God Bless all and keep the faith!!! FIGHT LIKE A GIRL!!! Just as it says.. Tammy Arizona Submitted 6-16-11 The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be … [Read more...]

Sarah’s Fight Like a Girl Story (Lupus, Fibromyalgia)

Aug
05
2011
Sarah's Story (Lupus Fibromyalgia)

I don't think I'll ever forget how my diagnoses came about. I thought it was just a routine follow up I was having with my Orthopedic Surgeon concerning my second right shoulder surgery. Then, I mention to my doctor about chronic jaw pain I've been having and how I've already seen a dentist and had my wisdom teeth removed and hoped possibly he could help me. He thought it was odd I had a lot of joint pain at the age of 17 so he decided to run some blood work. My ANA came back positive, so he sent me to see a rheumatologist. My jaw wasn't the only joint where I was experience pain at so they ran some tests and I was diagnosed with Fibromyalgia. Around the same time all this was happening I broke out in a really painful rash on my arms and got sent to a few more doctors. They took a skin culture and the tests came back positive for Discoid Lupus. I was half-way through my senior year of high school and got really sick. Luckily all of my teachers were very understanding and helped me … [Read more...]

Tonya’s Fight Like a Girl Story (Fibromyalgia)

Jul
02
2011
Tonya's Personal Story Chronic Pain

My name is Tonya, I am a 42 year old wife and mother of two grown daughters. I have been in pain since I was about 13, when I was diagnosed with Juvenile Rheumatoid Arthritis. At that time it only affected my knees. Then in my early twenties I was tested for lupus and rheumatoid arthritis, all tests were negative. I was told to get more sleep and to live with it. I have struggled with random pains ever since. Although while I was pregnant with my girls the pain did subside. In 2003 my husband was diagnosed and treated for testicular cancer. After 12 weeks of treatment and lots of running around, he was cancer free, and still is. Also, in 2003 I took a hard fall down some slippery steps severely bruising my tail bone. After about three weeks my stomach started to flare and I was diagnosed with IBS which I was told was stress induced. I had to learn how and when to eat to make it thru the day, whether I was staying home or going somewhere. I went to see several more doctors and had … [Read more...]

Kelli’s Fight Like a Girl Story (Fibromyalgia)

Jul
01
2011
Kelli's Story (Fibromyalgia)

My name is Kelli. I am 17 years old and I am a junior in high school. I was diagnosed with fibromyalgia in April 2010. It was blessing as well as a curse. A blessing in the sort that I knew what was wrong with me. A curse in the fact that I know what lies ahead of me. I have been told many times the pain is in my head and I can control how I feel, by doctors, family, friends, etc. I only go to school on half days and sometimes I struggle to do that. I have good days and bad days. Mostly bad days, it seems here lately. I found this Fight Like a Girl Club on Facebook and I have been reading article after article and I have learned so much already. I feel alone in my fight with fibromyalgia, although I have awesome friends and my family to support me - they can only do so much with words. Being 17, I get looked at extremely funny when I tell people what my disease is. I am known as the 'sickly' girl at school and now around my family, too. I really hope I find people on this website to … [Read more...]

Fibromyalgia and Narcotics

Jun
08
2011
20080713si_fibromyalgia_330

What can I say about narcotics?  Doctors hold them close and virtually never let them go due to rampant usage as recreational drugs. They will try ANYTHING first - and as well they should, as it isn't healthy to be on a narcotic diet for life. Back when I was 13 and developed Fibromyalgia, all I had was plain old Tylenol.  I most certainly swallowed those to the 8 a day limit regularly.  I eventually got bumped up to NSAIDs, but they just made my stomach a giant mess without easing any pain. I then moved to antidepressants, which eased the pain somewhat, but eventually my drug tolerance wore them down.  I tried all kinds of epilepsy medication and antipsychotics, which the psychiatrists thought would ease this mental pain of mine (even though it was mostly physical...).  I truly believe that some of those medications actually made me dramatically more ill. Lyrica and Gabapentin were next on the list - I wasn't a big fan of Lyrica as it gave me constant headaches, but … [Read more...]

Life of Agony…

May
10
2011
FLAGCBLOG

How ironic is it that one of my favorite bands is Life of Agony? Never in a million years would I think I would end up living a life of agony. I am not just speaking of the physical pain, but of the emotional pain that goes along with suffering from a chronic illness. My days are so unpredictable it’s frustrating. One day I am fine, the next four days I can barely move. I have to decide if today is really a day worth taking a shower for because the pain of the water hitting my hypersensitive skin makes it an unbearable task that I now avoid. I have bouts of guilt for being in pain and barely able to walk one day and then walking fine the next day. People think because I am young I am faking it. I wrestle with my mind because my mind tells me I should be hunched over, limping, using my cane, walker or wheelchair all the time. That I should not take advantage of my good days. Why? Because I crave consistency! For ONCE it would be nice to know what I will consistently be facing. I … [Read more...]

May 12 is Fibromyalgia Awareness Day!

May
07
2011
12

Fibromyalgia, in a large part, now controls my life. In fact, it gives chronic pain to more than 10 million Americans, and 3-6% of the global population (most of whom are women, but can also effect men and children).  Fibromyalgia is also common in families, and my family is no different.  My father and several aunts and uncles either have diagnoses or suffer with the same complaints. These people are often stigmatized by those in the population (including healthcare) who are uneducated and believe the illness is just: faking it, being lazy, etc... Fibromyalgia sufferers are often left without adequate pain management and with emotional abuse from their doctors. A portion of us are truly disabled and yet do not receive any kind of disability support from the government. Research is being done, but there is still very little known about the underlying causes, despite the finds of many overlapping symptoms. According to the National Fibromyalgia Association, "most … [Read more...]

INSPIRATION…

Mar
21
2011
Inspiration

It has been a while but I am back. I apologize for the lack of posts but the truth is I was in a yucky place and just could not dig deep enough to find the inspiration to show up and post. I apologize for that because this blog is my responsibility and I do take it seriously. When a lot of things happen at once you really need to fine tune your coping skills. It’s an actual job, something you must be diligent with. I failed in that task and my depression and pity party got the best of me. I hate being a Betty Buzzkill, its not who I am. Its part of who I am but only a small part and one I struggle to keep in check. When I get that way I find it a lot harder to make myself reach out to others, I don’t like to spread negativity. So in my feeble attempt at protecting all of you by way of isolation, I had let the blog take a back seat and for that I am truly sorry and will make sure it won’t happen again! That being said, I decided to make this blog topic about INSPIRATION! I am … [Read more...]

All I want for Christmas is…a new body!

Dec
17
2010
1275664_dreaded_gingerbread_woman

So the holidays are here again! Everyone is excited, running around decorating, shopping for gifts and planning their holiday menus. Most importantly they are making their holiday wish lists. All I want for Christmas is a new body! I honestly DREAD the holidays! Don’t get me wrong! I LOVE shopping, I love giving gifts and well, lets face it…I LOVE GETTING GIFTS! But truth be told, the holidays for someone battling an illness is STRESSFUL! Most people worry about the credit card bill they have to pay at the end of the month but for people like us, who are physically ill, we have to worry about the bill that comes in for over extending ourselves. There will always be a price to pay! I sat in line, on my scooter, for 7.5 hours on black Friday to get my Mom the laptop she wanted. During that time I dislocated a hip, my knee and my wrist. I got home and the next 48 hours were excruciating for me. Swollen feet, blazing back pain that takes your breath away, skin so hypersensitive … [Read more...]