I’m Dangerous

Jan
05
2012
tree-on-rock

Those of us fighting Ankylosing Spondylitis or other illnesses know that every day is a test of our courage and strength. We question if today will be the day when we find a cure, our energy will be restored, or even if we will find a bit of relief for a few moments. Being that it is the start of the new year, I couldn't help and look back for a moment to realize what an adventure my loved ones and I endured in 2011. Between the daily struggle of my chronic illness, my mother's continued health battles, my daughter's cancer fight, and unfortunate loss of her eye, I quickly realized as hard as it was at the time, in the end, we survived. I saw a quote by Josephine Hart that says, "Damaged people are dangerous. They know they can survive". I found so much truth in her words. I clenched my fists each time my doctor found that my medicine wasn't working to help my AS. I would fall into that ever popular deep despair moment. I switched meds 3 times in a year. Those of us with AS know … [Read more...]

Dealing With Naysayers

Aug
26
2010
Keep Fighting Girls!

Today my feelings were hurt as a result of another person's actions towards my illnesses.  This is fairly common in my world, much to my dismay. You see...a large portion of the common public still view Fibromyalgia and Chronic Fatigue Syndrome as forms of mental distress. Some have been known to call them the 'yuppie flu'.  There are still medical practitioners behind on the research who believe similar things, which has led me to spend most of my life with a psychiatrist, with absolutely no pain management. I have lost friends as a result of not being able to act like a 'normal' 23 year old female (which is apparently bars, partying, malls, and the like? - I probably just need new friends haha).  I have lost boyfriends, who have determined I am too high maintenance.  I have family who choose not to speak of the illnesses, and instead just look right through me. I am a firm believer in harnessing your demons, and Fibromyalgia, Myofascial Pain Syndrome, and ME/CFS haunt … [Read more...]