Coping

Jul
03
2012
Endometriosis Article

Have you ever on a bad day just gone into auto pilot? You start having this almost out of body experience where you feel like you’re watching everyone from the other side of a window.  You numb yourself; you can’t feel anymore, you can’t think, you are totally emotionless. This is what is called coping. So what is the difference in when you’re coping and when you’re being strong? I’ve been thinking about this because of a couple of days I’ve had this past month. I’ve had some days where I was in so much pain I just went into auto pilot. I went into that out of body experience because I couldn’t handle the pain I was in. I think I’ve done that so much in the past 5 or so years that it’s almost an automatic reaction that I can’t control anymore. I learned how to do this before I was diagnosed. When I didn’t have a constant supply of pain pills, and an explanation for the pain I was in. When I think of coping this is what I think of. I think of the days … [Read more...]

Strength

Oct
15
2011
Strength

Strength is a powerful word. Physical strength is very obvious to the human eye. Internal strength is something different and more difficult to define. Not only is it difficult to define it is hard to determine where one finds their internal strength. It varies from person to person. When I received my diagnosis last July, I did not feel strong, I felt like a weak and helpless child in the face of this disease. An anonymous quote said: “When on the edge of destiny, you must test your strength”. Breast Cancer put me on the edge of a new destiny – to survive at all costs. To ensure my survival I had to find new sources of strength. Since dying was NOT an option, I decided I would need an extraordinary amount of strength to fight the pink ribbon demon. Thank God I did not fight alone. I have the most amazing family and friends who helped me every step of the way. When my strength failed I could rely on them to push me forward. That's right – I am a thief – a strength stealer. … [Read more...]

Kristy’s Fight Like a Girl Story (Diabetes, Heart Attack, Grave’s, Glaucoma, Thyroid Disease)

Aug
15
2011
Kristy's Story (Diabetes)

I have been a Diabetic since I was thirteen MONTHS old. People always look at me and then go "did you say Months?" I was an infant. I went into a coma for seven days. No one thought I would make it. There were dozens of hospitalizations over the years and I was always "different". Things weren't as advanced back then as they are now. I had to be on insulin shots from the very beginning. I had to check my blood sugar 4 or more times a day my entire life. It's depressing. I couldn't do the things that I wanted, I couldn't run and play, I never had the energy. I remember my Grandpa saying I was here for a very special reason because I had survived…. But now I'm not so sure. I had the hardest pregnancy that my doctors had ever seen. I stayed in the hospital the entire time. I don't have the words to explain everything I went through. I thought after that, I would be ok. Then in 2007, out of the blue, I had a heart attack. I had an undiagnosed hyper-thyroid. I also have Glaucoma and … [Read more...]

Finding Balance When Battling Chronic Illness

Jul
30
2011
Katie Guest Writer LR

One of the hardest things for me is balance. No, I don't mean walking a beam like some Olympic gymnast. I mean the kind of balance every woman struggles with–work, home, family, friends, and self. There are things we HAVE to do, like make sure the kitchen is clean enough to not turn our children into radioactive mutants, and things we WANT to do, like crack open a good book in a bubble bath without the audience of our toddler suggesting toys and asking about our anatomy. Somewhere in between the have-to's and the want-to's is the fact that chronic illness means there's just simply less of us to go around. So what do we do? How do we do enough of the have-to's to keep up with life and still have time and energy for enough want-to's to maintain our sanity and well-being? Oh, wait, you were expecting an answer, right? I wish I had it all figured out. But I do have some ideas that have brought me some peace in this balancing act. I'm not hiding anything, though. I lose my balance and … [Read more...]

How My Breast Cancer Diagnosis Changed Everything

Jul
30
2011
Change

The one thing I hear is the idea that having cancer changes your outlook on life. One of the first letters we received from a friend when I got my diagnosis of breast cancer contained such sentiment. We were all, not yet 40, with small children, careers, stability finally just beginning to take hold. This friend, too, was a young cancer survivor. It was difficult to accept in the moment as we both read the words of the terrible journey about to arrive. Words meant to offer a taste of reality and encouragement. "I bet you and your wife look at life differently now", he wrote. Maybe that's true now. Back then, I had no idea what he really meant. I am now a part of a club I never wanted to join. Saying the words "cancer survivor" does not yet easily roll off my tongue. When it comes at a time in life when you are just getting started, it is especially isolating as an identity. I felt side swiped. I had a short career. I had young children just starting school. Being thirty something, … [Read more...]

When A Loved One Is Addicted

Mar
31
2011
Addiction

When someone you care about uses drugs—and this includes excessive alcohol use—it can wreak havoc in your relationship and in your life. After all, if you care about this person, you are enmeshed with him or her mentally and emotionally. You may be physically bonded through blood, marriage or living together, and your finances may be entangled with this person’s as well. What is more, if someone close to you is using, any negative repercussions he or she experiences cannot help but resonate in your life too. Addiction is defined by experts as any behavior that a person keeps repeating in spite of strong negative consequences. It doesn’t matter if the substance is not considered addictive in the classic sense (the classic sense being the person suffers intense physical withdrawal symptoms if he or she doesn’t ingest the substance). If the person keeps using a substance in spite of negative consequences, he or she is in the thrall of an addiction. A simple example is a … [Read more...]

What To Do When Pain Takes Over…

Feb
05
2011
camus

Desperate times call for desperate measures. Sometimes, Fibromyalgia and Chronic Fatigue Sydrome have me beaten so far down that I cannot even imagine continuing the fight. Yet I know giving up is not an option, so I have to keep coming up with more and more tools in order to cope in these moments of vicious agony/bleak and dreary moods. My illnesses keep getting worse and worse, so I am always expanding this section of my life.  My pain doctor deserted me the other day, so now I will have to cope with the fact that I currently do not have a medication prescribing physician.  I know that EVERY girl/guy on here has had moments in their illness when it is completely overwhelming. So I'm polling the group - what do you do when things get too bad??  Here's what I do: Let myself cry until there are tissues everywhere and I have a swollen face. If possible, order takeout.  Cooking on my poor painful knees is not a treat. SOME kind of pain-easer. Music. Being by myself, … [Read more...]

Dealing with the Holiday Season

Nov
24
2010
Breast Cancer Holidays

Feeling a little bah humbug about the holidays this year? The expectation to deck the halls and be jolly is overwhelming, especially when you're going through breast cancer treatment or have just finished treatment.  The last thing you feel like doing is being jolly, and it may seem like others don't understand why you can't be joyous during this time of year.  It's OKAY to feel this way. Everyone has the right to their own feelings, but it's important to express them by telling others how you feel or by writing them down in a journal.  Here are some tips from Cancer Care and The American Cancer Society on how to cope during the holidays: *It's okay to feel sad: You may feel sad about the year gone by and that's okay. Express those feelings. Tears can bring a sense of relief. It is common to experience a mixture of anticipation, disappointment, and apprehension about the future. Try not to suppress your feelings. Instead, talk them over with a loved one, a friend, or … [Read more...]