Survivor Stories & Information

Ever since my first period at 12 years old, I have had an awful experience. It began with awful cramps and then progressed to back pain. My first trip to the doctor was disheartening as I was told my periods would regulate themselves. After two years of cramps and three …

When I was thirteen I got my period. I was excited because all my friends had gotten theirs already. It was light and lasted three days. I was happy to tell my friends about it. But then I didn’t have it again for six months. When I finally got it …

Women are without a doubt stronger than men. What do men have to worry about? We are stuck with these reproductive organs that do nothing really but cause us HELL from the time they begin functioning. We have periods, cramps, endo, cancer, dysplasia, cysts, mood swings, and oh, when that’s …

I am 55 years old and have had endometriosis since I was 13. Like many young women I was told that the horrific cramps were normal, the pain was psychological, the pain was phantom, etc. The pain started just one day a month, then two to three, and then every …

It all started with a hemorrhagic cyst on my right ovary in May 2013. The pain never went away like they said it would. But endometriosis wasn’t a real consideration because I didn’t have any bleeding and my periods weren’t that bad. The only symptom I had was chronic pelvic pain. …

My story starts when I was about 11 yrs old. That is when I started menstruation (hell). From my very first period the pain & bleeding was horrible. My mother thought it was “normal” and gave little thought to it. I would stay home from school in such pain, she …

Well, this is a long ugly road that never got clear till recent years and we still fight every day! When I was in my teens I was an active farm girl. I would get these PAINFUL cycles. I would be in bed for two to three days, it scared …

First off I’m so thankful that other women have shared their stories, I don’t feel like such an outsider. I’m 31 years of age and I have always had severe cramping and an overall  horrible experience whenever I got my cycle. It would get so bad that I would get …

After almost seven years of trying to hide my illness, it is time to metaphorically come out of the closet. One day when I was in fourth grade I all of a sudden hunched over in my seat from a sudden and intense onslaught of pain. As you guessed it, …

  My story started out by going to the doctor in March of 2011 with severe abdominal pain, after being told it was “just” multiple cyst that burst. I was basically told to take it easy. We decided six months later to have my first laparoscopic surgery. After almost a year …