Hi, my name is Stephanie. I was diagnosed with Arnold Chiari Malformation 2 years ago, due to real bad migraines.
A few months ago, I started getting dizzy. My legs and arms go numb, I have blurred vision, depression, and anxiety. My shoulders hurt, and my face feels numb at times. I went to the doctor, and they sent me for an MRI. I got a call from the doctor a week later, saying I need to go see a neurosurgeon because I have a cyst in my spinal chord.
I’ve seen the neurosurgeon. He is sending me to get another MRI that shows CSF flow. Then, he said he is sure I will have to have a surgery called decompression surgery on my brain.
I’m scared, but I have 2 awesome kids and a great husband, so I have to do it.
The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.