Cause: Chiari Malformation

Hi, I am wanting to share my story because of all of you!! So Brave and So Strong!! So… where do I begin? I have had some sort of headaches since I was young. When I was in college I was diagnosed with migraines and put on different types of …

I am actually telling my daughter’s story. Even though I myself don’t have Chiari, I fight right along with her. She started getting really bad headaches about 6 years ago, not wanting to go to school, etc. I thought it was just because she didn’t want to get up. Then …

Hi, my name is Stephanie. I was diagnosed with Arnold Chiari Malformation 2 years ago, due to real bad migraines. A few months ago, I started getting dizzy. My legs and arms go numb, I have blurred vision, depression, and anxiety. My shoulders hurt, and my face feels numb at times. …

I fight for dreams. When I was diagnosed with a Chiari malformation/Basilar invagination, all my dreams suddenly became impossible–my dream of becoming a black belt, of becoming a better skier, and of living the life I wanted to live. Hope overcame me when I had a decompression surgery and a …

Hey, y’all! It’s the beginning of 2016, and I am so happy to be putting 2015 behind me. I am 17, happy, and (hopefully) finally healthy. In October of 2014, I was in a minor car accident after six months of driving. I felt fine, nothing serious, but went to …

My name is Ashlyn Van Winkle. I’m an 18-year-old from Texas. Back in the beginning of 2014, I began to have awful headaches, along with neck and shoulder pain. Along with the pain, I was fatigued all the time. I didn’t want to cause trouble for anyone, so I kept …

Hello, my name is Tracy Fapetu. I was diagnosed with Arnold Chiari Malformation about 2 weeks ago. It all started back home in Nashville, Tennessee in 2012, after going back and forth to the doctor about headaches, dizziness, gaining a lot of weight and not knowing why, back pain, and muscle spasms. …

A few years ago, Fight Like A Girl shared my ongoing fight for medical answers, and I wanted to give everyone an update! For the past 6 years, I had been fighting an unknown disorder that didn’t seem to have any cause. It caused me seizures, dystonia, vision and hearing …

My name is Nikita. I am a 17-year-old mother of a 4-month-old boy. About two years ago, I started getting really bad headaches and fainting. I went to the hospital, and they told me nothing was wrong. I had an MRI, and they said it was clear. I went home and still suffered …

My daughter is 16 and was diagnosed last year with Chiari. This came about after many, many visits to her doctor, neurologist, and 3 MRI’s. She has daily headaches, migraines, neck pain, is always off balance, has a sore body, and is very moody (more so than normal teenagers). She …