Superior Mesenteric Artery Syndrome Stories

Katie’s Fight Like a Girl Story (Superior Mesenteric Artery Syndrome)

Feb
23
2015
Katie's Story SMAS

Hi, my name is Katie, and I am 15 years old. I've been having stomach problems for over a year now, and every time my parents would take me to the doctor's, they said it was a virus. My parents would take me to the doctor's often. In November, they took me back, and I weighed 113 pounds. In December, I still had the pains. In January, 2 months had passed since I'd been to the doctor's, and I finally went back. They said I lost 12 pounds in 2 months, so I got scared. My doctor contacted my local hospital and wanted an Upper GI and a sonogram, so I went the next day for testing, and later that day, after my tests were done, they sent me home. On my way home, my doctor called my mom and said I needed to come back to the hospital. So I went back, and the 3rd day I was in the hospital, they said I had Superior Mesenteric Artery Syndrome. I had no idea what that was, so my doctors told me and said that is why I've been having stomach problems for so long. They also said it's really rare, … [Read more...]

Alisha’s Fight Like a Girl Story (Superior Mesenteric Artery Syndrome)

Jan
02
2015
Alisha SMA Syndrome

Hi, my name is Alisha, and I am 23 years old. I was diagnosed with SMA about 4 months ago. I have had problems with my stomach for as long as I can remember. I was constantly going to the emergency room, at least once a month, throughout my teenage years, usually being pumped with fluids through an IV and being told I was dehydrated and then being sent home. Some of the time, I would have a UTI also. I also was told at a very young age that I have endometriosis. I am trying to quit smoking for my new specialist I am seeing for my SMA. I'm hoping he will consider doing surgery or something for this very soon because I don't know how much more I can take. The pain is increasing, and now I get flushing with the pains, and I lost my balance at work and fell over the other day. I'm worried I'm gonna collapse or not be able to take care of my three little ones or work. It helps to take away a little pain if I sit on my couch and do a knee to chest position. I really don't know much about … [Read more...]

Tonya’s Fight Like a Girl Story (SMA Syndrome)

Nov
22
2013
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My Story: Surviving SMA Syndrome Hi, my name is Tonya Valleau, I'm 21 and was diagnosed with SMA syndrome earlier this year. I'd like to share my journey with you all. Around mid August of 2012 marked the very first time I started getting sick. It was initially a morning sickness, feeling extremely nauseous once I started moving around in the mornings and often times I would vomit. I also had discomfort when passing bowel movements (gross, I know). The nausea would go away within a few hours and I’d feel completely fine for the remainder of the day. This lasted for about two weeks. I quickly ruled out the possibility of pregnancy, knowing ‘morning sickness’ was not the cause. Since it only lasted for a few hours daily I was able to ignore it and continue on with my day for the most part. I assumed it was a stomach bug and it would pass. It didn't. It eventually got worse, my nausea and vomiting turned into an all day thing. It was a quick switch. I woke up one day and just could not … [Read more...]

Angela’s Fight Like a Girl Story (Superior Mesenteric Artery Syndrome aka SMA)

Jun
28
2013
Angela's Story (SMA) LR

I woke up a few weeks before my 12th birthday and just wasn't feeling well. This continued for a month or so and I began having a lot of pain every time I would eat and would throw up everything I ate. My parents took me to the ER countless times, almost every pediatrician and doctor in our town. No one could tell us what was wrong.  They decided I was just anorexic and it was all in my mind. By this time, I had went from an 85 lb chunky and athletic 12 yr old to a 58 lb child who couldn't walk anywhere because I had seizures from being so tiny. I was sent 4 hrs away from home to Atlanta, Ga to their children's hospital. When I got there, I finally heard the diagnosis. Superior Mesentery Artery Syndrome. What in the world is that?, I thought. Well, it is when the mesenteric artery literally kinks your duodenum ( small intestines ) like you would a water hose. It doesn't allow anything to pass through so you vomit up any and everything you eat and essentially this causes your body to … [Read more...]

Danielle’s Fight Like A Girl Story (Superior Mesenteric Artery Syndrome)

May
26
2013
Purple Ribbon

Hi, my name is Danielle. I am a fan of the Facebook page, Fight Like a Girl.  This story is a little different. I have a very rare syndrome called Superior Mesenteric Artery Syndrome. Only around 500 of us in this world have this, from the latest studies. I do believe that number has grown. The mortality rate is 1 out of 3! I was diagnosed in 2010 and have since then had the corrective surgery for this issue, but there will never be a cure! To me, the surgery helped only a little bit but that’s better than nothing! Since then, I have also been diagnosed with pancreatitis, gastroparesis and fibromyalgia - on top of SMAS. I fight all this every single day. I am supposed to be heading back to the surgeon to get another feeding tube placed, but I'm waiting to pick up insurance again before I go back to any doctors. I refuse to pay that bill. Thanks for listening. Danielle Connecticut Submitted 9-19-2012 The informational content of this article is intended to convey a personal … [Read more...]