Superior Mesenteric Artery Syndrome Stories

Tonya’s Fight Like a Girl Story (SMA Syndrome)


My Story: Surviving SMA Syndrome Hi, my name is Tonya Valleau, I'm 21 and was diagnosed with SMA syndrome earlier this year. I'd like to share my journey with you all. Around mid August of 2012 marked the very first time I started getting sick. It was initially a morning sickness, feeling extremely nauseous once I started moving around in the mornings and often times I would vomit. I also had discomfort when passing bowel movements (gross, I know). The nausea would go away within a few hours and I’d feel completely fine for the remainder of the day. This lasted for about two weeks. I quickly ruled out the possibility of pregnancy, knowing ‘morning sickness’ was not the cause. Since it only lasted for a few hours daily I was able to ignore it and continue on with my day for the most part. I assumed it was a stomach bug and it would pass. It didn't. It eventually got worse, my nausea and vomiting turned into an all day thing. It was a quick switch. I woke up one day and just could not … [Read more...]

Angela’s Fight Like a Girl Story (Superior Mesenteric Artery Syndrome aka SMA)

Angela's Story (SMA) LR

I woke up a few weeks before my 12th birthday and just wasn't feeling well. This continued for a month or so and I began having a lot of pain every time I would eat and would throw up everything I ate. My parents took me to the ER countless times, almost every pediatrician and doctor in our town. No one could tell us what was wrong.  They decided I was just anorexic and it was all in my mind. By this time, I had went from an 85 lb chunky and athletic 12 yr old to a 58 lb child who couldn't walk anywhere because I had seizures from being so tiny. I was sent 4 hrs away from home to Atlanta, Ga to their children's hospital. When I got there, I finally heard the diagnosis. Superior Mesentery Artery Syndrome. What in the world is that?, I thought. Well, it is when the mesenteric artery literally kinks your duodenum ( small intestines ) like you would a water hose. It doesn't allow anything to pass through so you vomit up any and everything you eat and essentially this causes your body to … [Read more...]

Danielle’s Fight Like A Girl Story (Superior Mesenteric Artery Syndrome)

Purple Ribbon

Hi, my name is Danielle. I am a fan of the Facebook page, Fight Like a Girl.  This story is a little different. I have a very rare syndrome called Superior Mesenteric Artery Syndrome. Only around 500 of us in this world have this, from the latest studies. I do believe that number has grown. The mortality rate is 1 out of 3! I was diagnosed in 2010 and have since then had the corrective surgery for this issue, but there will never be a cure! To me, the surgery helped only a little bit but that’s better than nothing! Since then, I have also been diagnosed with pancreatitis, gastroparesis and fibromyalgia - on top of SMAS. I fight all this every single day. I am supposed to be heading back to the surgeon to get another feeding tube placed, but I'm waiting to pick up insurance again before I go back to any doctors. I refuse to pay that bill. Thanks for listening. Danielle Connecticut Submitted 9-19-2012 The informational content of this article is intended to convey a personal … [Read more...]