RSD Stories

Kerry’s Fight Like a Girl Story (RSD aka Reflex Sympathetic Dystrophy)

Jan
22
2012
Kerry's Story (RSD) LR

In 2000, when I was 13 years old, I was running pre-season for cross country…my FIRST year in high school!!! During a practice, I twisted my ankle, but finished the practice before finding the athletic trainer and talking with him. He told me to get an x-ray and stay off of it for a week before trying to run again. The x-ray came back negative and I began high school on crutches, just as I was told. A week later, the pain was worse, NOT better. I went through a series of MRIs, more x-rays, bone scans, etc. Nothing was coming back with any reason as to why I was in pain. I now felt as though I was on fire, my foot was swollen, and quite discolored. After about 3 months, my pediatrician ran out of ideas and sent me to a pediatric orthopedic about an hour away. After talking with me, my mom, and looking at my foot for about 5 minutes, he diagnosed me: Reflex Sympathetic Dystrophy. That’s quite a mouthful of jumbled words with ZERO meaning for someone so young. He explained it to … [Read more...]

Tracy’s Fight Like A Girl Story (RSD)

Oct
22
2010
Tracy's Story (RSD)

My story begins in 2001 when I went to the ER for kidney stones. The IV I had did something crazy and I now have reflex sympathetic dystrophy. Since then, I have also been diagnosed with ankylosing spondylitis, fibromyalgia, autoimmune hypothyroidism with adrenal fatigue, as well as parry-romberg syndrome. I have started a support group here in Oklahoma for RSD and I am also trying to get a bill passed here to get RSD more recognized so, yes, I am fighting for myself and, for the past four years, I have had to really fight being told that nothing was wrong when the whole time I was hypothyroid and had adrenal glands that were not functioning.  So stand up for yourself and be heard. The PRS is another whole story. The left side of my face has caved in and is very embarrassing so, on top of being in pain 24/7, my face is ugly. Kids even stare at me and I cannot find a doctor here to help. So I just keep fighting. Along the way I am trusting that I still have the fight in … [Read more...]