Lupus Stories

Lisa’s Fight Like a Girl Story (Myasthenia Gravis, Lupus, Cancer)

Aug
28
2015
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Hi! My name is Lisa Douthit. I feel like I have been battling disease my whole adult life. I even wrote a book titled Wellness Warrior - Fighting For Life In Fabulous Shoes to talk about some of the lessons I’ve learned along the way and what worked to help me feel better. At 26-years-old, my doctor found a tumor in my heart. During surgery, he found nodes containing Non-Hodgkin's lymphoma. After chemo and radiation, I got thyroid cancer. Treatments were rough, but there was an end in sight, so I fought on and beat cancer (insert high-five here). Then came the autoimmune. It was a terrible disease I couldn't even pronounce. Myasthenia Gravis brought me to my knees, but here is what I learned: WE ARE NEVER A VICTIM TO DISEASE. We may have bad days, really bad days, but they are just moments in time. They pass. Our job is to persevere. To fight. And to never give up. Never ever. Through this experience, I've learned how strong I can be. I've also learned more about compassion, … [Read more...]

Tammy’s Fight Like a Girl Story (Lupus, Fibromyalgia)

Aug
06
2015
Tammy's Story Lupus Fibromyalgia

Growing up, I was very healthy. Then in 2004, I started getting ill and ended up in the hospital. The doctors didn't know what was wrong. In 2007, at the age of 32, I ended up hospitalized because they thought I was having a heart attack. I passed out woke up to my husband panicking, and I realized I was in a hospital room! I was there for almost three weeks. They ran all kinds of tests on my heart and couldn't figure it out. Then, I was hospitalized again because of my kidneys. The doctors were baffled and sent me to a specialist. The doctor took a look at me and said, "I'm gonna run a lot of blood work on you to make sure you have what I think is wrong with you." As my husband and I waited, I was so scared and nervous, but also ready to find out what was going on with me! I used to work 12 hour shifts, 60 hours a week, and now I could barely even get through part-time work. I was exhausted all the time. I was always in extreme pain and very irritable and forgetful! Then, … [Read more...]

Marsha’s Fight Like a Girl Story (Lupus, Heart Disease)

Jun
26
2015
Marsha's Story Lupus Heart Disease

In 2005, I was diagnosed with Brugada Syndrome, a heart disease that causes dysrhythmia. The doctor implanted a defibulator/pacemaker to help control the dysrhythmia. In 2008, I was diagnosed with lupus. Before my diagnoses, I experienced fatigue, joint pain, and pain in my spleen. My sister-in-laws' wedding was coming up in October of 2008. In June, we went to try on shoes for her wedding because I was the maid of honor. My feet were swollen that day, and after I got to the mall, I didn't feel well at all. I went to the emergency room and found out my kidneys weren't functioning correctly, my spleen and liver were enlarged, and I was anemic. I was admitted to the hospital and received several tests. After a week in the hospital, the doctors didn't know what it was, so they sent me to the Ohio State University Medical Center. The doctors at Ohio State eventually found out what was wrong. I spent another two weeks there. A few months after finding out I had Lupus, my husband lost his … [Read more...]

Dipika’s Fight Like a Girl Story (Lupus)

May
28
2015
Dipika's Story Lupus

Hi, I'm 22 years old, and I was diagnosed with lupus three years ago, around my 3rd year at university. It was around finals, and I was really stressed about my grades and maintaining a high GPA. Little did I know, my fate was about to change. I noticed some weight loss two weeks prior to my diagnosis, but I shrugged it off, thinking it was due to the stress of studying. Then, I started to develop this back pain. I thought it was my mattress, so I changed it, but it did not help. Suddenly, there was this terrible pain in my hands. I could not even bend my fingers. I told my mom something was wrong, but she said it was due to exam stress. One night, my knees were swollen, and I had an extremely high fever. My jaw was completely locked, and I felt so cold, I was trembling. The next morning, I could not move. That was when we decided to go to the family doctor. He ordered some blood tests, put me on some antibiotics, and told me to rest for one week. I went back to him the following week, … [Read more...]

Natasha’s Fight Like a Girl Story (SLE Lupus, Sjogren’s, Raynaud’s Syndrome, Fibromyalgia, etc.)

Apr
27
2015
Natasha's Story Lupus

I had been out of work for a year, and I decided to go back because I had begun to gain a lot of weight. So as I began to work, within the first 3 weeks, my body began to do all kinds of things. I began to swell, and my body ached badly. I had migraines and trouble staying focused. I began to take over-the-counter medication that didn't help, so I ended up in the emergency room 3 or 4 times in one week. I finally decided to follow up with the doctor on the discharge sheet. I scheduled the appointment, and after a few visits and different meds that didn't help, I sat down with Dr. Sawyer, and she went over a few things with me. She explained to me she had a family member that had the same issues and ended up having lupus, so she tested me, and my test came back positive for lupus and Sjogren's. My whole life felt like it was sitting in my lap. She then referred me to a rheumatologist, where the tests also came back positive for both. As I began to live a life with lupus and … [Read more...]