Kidney Disease Stories

Jessica’s Fight Like a Girl Story (Dialysis/Kidney Failure)

May
16
2014
jess

Hello world, where do I start? Well my name is Jess and I am 24 year old. As a baby I started to have kidney problems at 13 year old. The doctor told my beautiful mother that I would need to be put on dialysis. My mother told them no, and she said to please come up with a better option. When I was 14 year old my mother got tested to see if she can give me a kidney but she was not my match. My daddy also got tested but he was not a match. Finally, my sister was tested and she was my match. October 18, 2004 was the day that my life changed and my sister gave me a kidney. I was really happy that I took good care of that kidney until last year February 27, 2013. I can remember everything as if it were yesterday which was on a Wednesday. I had went to the doctor for a follow up weeks before, I was already feeling sick and was trying so hard not too tell anyone. Every time I came from work I went to sleep, I kept loosing weight, and I was not eating. I didn't have any energy to do … [Read more...]

Donna’s Fight Like a Girl Story (Kidney Disease)

Feb
12
2014
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My story began last year. Although I never had my kidneys checked I knew something was wrong. Out of nowhere I would have very bad pain. Last year in 2013, I was admitted to the hospital for a foot infection that was so bad the ER doctor ran into my room and said your body carries some white cells but in my body there were 42,000! I was admitted to the hospital. I drifted in and out just enough to hear the doctor say something about surgery. I assumed it was for my foot but next thing I knew I woke up to my body looking like a blimp. Anyway, they rushed me into surgery again. When I woke up there were there were tubes coming out of my chest. Weird, I thought. I asked the nurse what was going on. She said they were for dialysis.Wait a minute, I was sent to the hospital for a foot infection and what the heck was dialysis. When the nurse told me, I said I knew nothing about kidney disease or dialysis and  that the machines sounded like they were used for chemo patients. Anyhow, they … [Read more...]

Melinda’s Fight Like a Girl Story (Kidney Failure)

Sep
30
2013
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My name is Melinda, I'm a wife and mother. I discovered I had kidney failure in the year of 2007. I was tired and sick all the time. One night while my husband was out of town working, I had bad stomach pain. I couldn't handle it so I went to the ER with my mother. The doctor did a lot of test and found that I had  a lot of protein in my urine. They also told me that my kidneys aren't functioning correctly. I was referred to a nephrologist and I learned I was stage 3 kidney failure. I had no idea what was going on. In my opinion I thought maybe I had cancer because I had recently lost my brother to kidney cancer. It was really hard for me to process that I was sick. Everyday for me is a battle of sick days, good days, happy days, angry days, and I even have why me days. My husband and kids are what get me through those hard days. Without them I don't know what I'd be like. In 2009, I learned I was pregnant. I had kidney failure and I was pregnant. The doctors said that it wasn't … [Read more...]

Rachael’s Fight Like a Girl Story (Nephrotic Syndrome)

Sep
30
2013
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Hi my name is Rachael. I'm 22 years old and I was diagnosed with FSGS nephrotic syndrome in April of 2012. I knew I was sick when I was in year 12 (2009). I would get stomach pains on a regular basis I was told by doctors that there wasn't anything wrong with me and that it was just period pain. The pain started to get worse and traveled to my back and ribs. I then decided to go and see a different doctor but they where all saying the same thing; it was stress from HSC or period pain. When I had finished year 12 the pains had stopped for a while but I still knew my body and knew there was something wrong. I was getting sick every time I drank alcohol even if it was one cruiser. Then in February of 2012, I got engaged and started planning my engagement party which was set for 26th of April. On that night my feet swelled up and I just figured it was because I had been on them all day so I swapped my high heels for thongs. The next day my legs had started to swell and I knew there was … [Read more...]

Brenda’s Fight Like a Girl Story (Kidney Disease)

Jul
08
2013
Brenda's Story (Kidney Disease) LR

My name is Brenda Brown. I am a 45 year old single mom of three, living in Abbotsford, BC Canada. I've been blogging about my story for almost a year now. I have chronic kidney disease with rapid decline that started in the spring of 2012. I went from 28% kidney function to 6%, and started peritoneal dialysis in August 2012. Meanwhile I was added to the kidney transplant list and was told it would be 8-10 years before I might get a transplant unless a family member or friend decided to donate a kidney for me. So my 23yr old daughter decided she wanted to give me her kidney. Unfortunately, I have a lot of anti-bodies and we weren't a match. My peritoneal dialysis started to fail and I ended up in the emergency room the week before Christmas 2012, and I had to get another catheter to allow me to do hemodialysis. I now go into the hospital three days a week for a four hour treatment with each visit. This has allowed me to feel better, to continue to work, as I am a single mom with … [Read more...]

Jamie’s Fight Like a Girl Story (Kidney Disease)

May
20
2013
Jamie's Story (Kidney Disease)LR

I was always such an athletic person, from childhood through high school, so it was a huge shocker when I was diagnosed with FSGS, a type of chronic kidney disease, in August of 2009 at 26 years old. I was later diagnosed with celiac disease in April of 2011. As a child my parents told me I would always complain of not feeling well. When asked what was wrong, I could never articulate what I was feeling, so I unfortunately got labeled as a hypochondriac. I played soccer from the age of 4 and up. I noticed in high school, I felt like I was being slowed down, as if there was a force holding me back from running as fast. I had also developed what I thought was just a sensitivity to greasy foods, so I stayed away from pizza and certain sandwiches which triggered me to not feel well. Speeding up to 2005, I started feeling a lot more fatigued than normal. I went to my primary care physician and had some blood work done. The results showed I was mildly anemic, and there were also some … [Read more...]

Elizabeth’s Fight Like A Girl Story (Kidney Disease)

May
15
2013
Elizabeth's Story (Kidney Disease) LR

Hello, my name is Elizabeth. Everyone who knows me calls me Liz. I am a 25 year old mom of 2 wonderful children and have the most supportive husband in the entire world. We have been together for 9 years. When I was 18 I started having a lot of back pain and was sick all the time and I gained a bunch of weight. My doctors could not figure out why. The doctors had no explanation for my problems, they dismissed them. I struggled with bladder infections and severe pain for 2 years. One month before I turned 21 I found out that I had a kidney stone 3 inches in diameter in my right kidney. From that moment forward my world changed. I was diagnosed with kidney disease at the age of 21 in 2007. I began the first of MANY long and often painful hospital stays. I was in the hospital sometimes for weeks at a time; hooked up to tubes and machines and away from my family. In 2009 the doctor told me there was nothing more they could do and that my right kidney had to come out. By this time, I … [Read more...]

Anna’s Fight Like a Girl Story (Fraser’s Syndrome and Cervical Cancer)

May
15
2013
Anna's Story (FS and Cervical) LR

When I was a child, I had been afflicted with many medical issues such as ear infections with four sets of tubes, a stigmatism in my left eye, asthma and scoliosis. At the age of 5, I had been suffering from what they thought was fsgs. But little did I know and all my doctors know that down the road I would face life threatening illnesses that would become the toughest, life changing events ever in my young life. Not only would I be on the edge of death, but I also would be on the precipice of the most spiritual awakenings of my life. My first life-changing event came on October 25, 2002. At the age of 15, I was diagnosed with ovarian cancer and had to undergo a major surgery to remove my ovaries and fallopian tubes, while my uterus is still intact. I also underwent 3 rounds of chemotherapy which took 5 months of treatment. If the doctors hadn't caught it before that Christmas, I would not have seen my 16th Birthday. I managed to keep up with my studies through my sophomore year of … [Read more...]

Kathie’s Fight Like A Girl Story (Polycystic Kidney Disease aka PKD)

May
13
2013
Green Ribbon LR

My name is Kathie, and I am 57-years-old. I am a mother, a grandmother, a daughter, a sister, and an aunt. I am also living with an incurable disease called  autosomal dominant polycystic kidney disease (ADPKD). When I was 49 I was blindsided by the diagnosis. This is what I have learned by living with it. Normal kidneys are the size of a fist, mine are the size of a football. Having 2 footballs in your body where 2 fists belong means a lot of moving  around of other organs, especially the colon. Fun times there, let me tell you! Yes, I know I look pregnant;  you don’t have to tell me, and pain is my constant companion. I don’t want it around, but it is stubborn and will not go away. My urine can be anywhere from yellow to red and every variation in between, but I know when the urine is red it means I’m in trouble…and it hurts! I have also learned that even though I have no control over this, I do have control over my life. I can sit and worry about having to go on dialysis … [Read more...]

Judi’s Fight Like a Girl Story (Polycystic Kidney Disease aka PKD)

Dec
31
2011
Judi's Story (PKD)

In brief I was born with polycystic kidney disease and began suffering symptoms when I was in my late teens. The cysts are in my kidneys and liver which caused both organs to be enlarged. When a cyst itself enlarged and became engorged with blood or infection they became extremely painful. Eventually they would rupture and cause internal bleeding for which the only "cure" was to lie flat on my back for weeks at a time. I once figured out that if I added my "down time" all together out of 16 years in my twenties and thirties I spent an entire three of those years flat on my back in bed and/or on the sofa trying to get the bleeding to stop. It was disabling and caused me to limit and exclude many activities I wanted to do and it also meant that I couldn't wear many types of clothing that I wanted to wear because I could have nothing touch my waist – ever. It would cause the cysts to act up and bleed if I did. In spite of all of this my husband and I did adopt ( because we didn't want … [Read more...]