Gastroparesis Stories

Jessica’s Fight Like a Girl Story (Gastroparesis)

Aug
06
2015
Jessica's Story Gastroparesis

Hi, I am Jessica, and I am almost 18 years old. I have not been diagnosed with anything yet, but last year, I was 98% sure I had Gastroparesis, based on my own research. I had a 2-hour gastric emptying study, and it came back with no abnormalities. Gastroparesis is the one and only illness that fits my puzzle exactly. Please let me know if you think it sounds like I have it. I have been suffering for a little over three years, since the beginning of 2012. I vomit at least 20 to 30 times a day, every single day. I am always nauseated, and mornings are the worst because it makes me not even want to wake up. I am always tired, and I get confused more easily. I am beyond weak and get exhausted from only running eight feet or climbing up four steps. My abdominal region is always hurting, as if something inside of me is trying to get out with a knife. I also hurt in my back and in my rib cage. I vomit right after I eat, sometimes 35 minutes after, and I vomit every morning before I eat. … [Read more...]

Allison’s Fight Like a Girl Story (RSD/CRPS (Reflex Sympathetic Dystrophy), Gastroparesis/Intestinal Dysmotility/DTP, POTS (Postural Orthostatic Tachycardia Syndrome)/Dysautonomia)

Feb
25
2015
Allison's Story RSD etc

Unbroken Spirit in a Broken Body Barely conscious, lying motionless, sounds of hurried conversation and hospital machines loudly blare as my heart rate skyrockets beyond 160, my blood pressure falls past 70/30, and my fever spikes to 105. In the ICU, fluids are vigorously pumped into my thin veins as my eyes begin to swell shut, and a blood transfusion begins. Once again, doctors surround my painfully frail and ailing body as I try to comprehend yet another harrowing situation, in which I pray to God that I will evade death once more, for I am only 24. Writhing in agony, I mentally recall moments from the past 9 years in which I've endured the treacherous daily battles from severe cases of full body RSD/CRPS, POTS/Dysautonomia and Gastroparesis/DTP, among other illnesses, all of which cause countless unmanageable symptoms and relentless excruciating pain every moment of my life. Sweet 16 was a dream that never was, for the raging fire, RSD, set me ablaze, maliciously burning from … [Read more...]

Cari’s Fight Like a Girl Story (GP, RA, Sjogrens, Raynauds)

Oct
27
2014
Cari's Story GP RA etc

Exactly 1 year ago, my life went from gaining a 1st Degree Black Belt in Taekwondo to a life of pain. Doctors kept thinking it was all in my head, but I pressed on for answers. One visit to a rheumatology doctor brought forth a diagnosis of Rheumatoid Arthritis, Sjogrens, Raynaud's, and multiple organ prolapses. In April, I had a rectocele repair that would rupture 3 weeks later. In July, I went to Mayo to get 2nd opinion regarding prolapses. I had a hysterectomy while there. Back home, 3 weeks after surgery, I couldn't eat or drink without nausea, vomiting, and extreme fullness. Local doctor thought it was delayed gastric emptying and said to try Reglan. I had a reaction to it and had to discontinue. Back to Mayo, GI doctor did a scope, confirmed gastroparesis and said, change your diet. Today, in October, I ended up in the ER for extreme pain. They gave me a shot, and then she said she needed to go deal with "real emergencies." I'm in so much pain and have nowhere to turn. … [Read more...]

Sarah’s Fight Like a Girl Story (Gastroparesis)

Dec
13
2013
Sarah's Story (Gastroparesis)

Hello, my name is Sarah. Four years ago when I was 17 I shared a story about being diagnosed with fibromyalgia and discoid lupus. Four years later, I am now sharing my story about being diagnosed with gastroparesis. It all started November of 2012 when I started having really bad stomach pains. I saw my GI and had a endoscopy done as well as some other tests. Nothing really showed up in those test. I then started to get worst. I started vomiting sometimes after I ate, loosing 40 lbs from all the vomiting. Eventually NOTHING I ate would stay down. I had to go on non-paid medical leave at work because I kept getting sick during my shift. I had to withdraw from college because I fell so far behind. I would go to the ER vomiting blood and they would just send me home! I went to about six different doctors. One doctor basically told me it was in my head. It was really hard to be so sick and have no idea what in the world was making me sick. Finally, I found the right doctor who … [Read more...]

Sylvia’s Fight Like a Girl Story (Gastroparesis)

Sep
27
2013
480

My name is Sylvia Platz, I'm 18 years old, and have been diagnosed with gastroparesis. On August 26, 2009, at age 14, I was in a horse back riding accident. I immediately felt a sharp, stabbing pain underneath my left breast. For some reason, I threw up right then and there. My mom took me into the emergency room that night because I was in a tremendous amount of pain. There they gave me a CAT Scan, X-Ray, and ran blood work. All of my test results came back normal. I was sent home and told, "nothing is wrong, take this anti inflammatory, you'll be fine." I went home and had something to eat. Half way through my meal I became severely nauseous and vomited. This became a regular part of my day, every day, for four and a half years, five to 12 times a day. All while still suffering from the horrible pain in my side. I had seen multiple doctors and traveled hours (while nauseous) to find a specialist or anyone that would listen to me. With the 98% of the doctor's I visited (85 … [Read more...]