Gastroparesis Stories

Allison’s Fight Like a Girl Story (RSD/CRPS (Reflex Sympathetic Dystrophy), Gastroparesis/Intestinal Dysmotility/DTP, POTS (Postural Orthostatic Tachycardia Syndrome)/Dysautonomia)

Allison's Story RSD etc

Unbroken Spirit in a Broken Body Barely conscious, lying motionless, sounds of hurried conversation and hospital machines loudly blare as my heart rate skyrockets beyond 160, my blood pressure falls past 70/30, and my fever spikes to 105. In the ICU, fluids are vigorously pumped into my thin veins as my eyes begin to swell shut, and a blood transfusion begins. Once again, doctors surround my painfully frail and ailing body as I try to comprehend yet another harrowing situation, in which I pray to God that I will evade death once more, for I am only 24. Writhing in agony, I mentally recall moments from the past 9 years in which I've endured the treacherous daily battles from severe cases of full body RSD/CRPS, POTS/Dysautonomia and Gastroparesis/DTP, among other illnesses, all of which cause countless unmanageable symptoms and relentless excruciating pain every moment of my life. Sweet 16 was a dream that never was, for the raging fire, RSD, set me ablaze, maliciously burning from … [Read more...]

Cari’s Fight Like a Girl Story (GP, RA, Sjogrens, Raynauds)

Cari's Story GP RA etc

Exactly 1 year ago, my life went from gaining a 1st Degree Black Belt in Taekwondo to a life of pain. Doctors kept thinking it was all in my head, but I pressed on for answers. One visit to a rheumatology doctor brought forth a diagnosis of Rheumatoid Arthritis, Sjogrens, Raynaud's, and multiple organ prolapses. In April, I had a rectocele repair that would rupture 3 weeks later. In July, I went to Mayo to get 2nd opinion regarding prolapses. I had a hysterectomy while there. Back home, 3 weeks after surgery, I couldn't eat or drink without nausea, vomiting, and extreme fullness. Local doctor thought it was delayed gastric emptying and said to try Reglan. I had a reaction to it and had to discontinue. Back to Mayo, GI doctor did a scope, confirmed gastroparesis and said, change your diet. Today, in October, I ended up in the ER for extreme pain. They gave me a shot, and then she said she needed to go deal with "real emergencies." I'm in so much pain and have nowhere to turn. … [Read more...]

Sarah’s Fight Like a Girl Story (Gastroparesis)

Sarah's Story (Gastroparesis)

Hello, my name is Sarah. Four years ago when I was 17 I shared a story about being diagnosed with fibromyalgia and discoid lupus. Four years later, I am now sharing my story about being diagnosed with gastroparesis. It all started November of 2012 when I started having really bad stomach pains. I saw my GI and had a endoscopy done as well as some other tests. Nothing really showed up in those test. I then started to get worst. I started vomiting sometimes after I ate, loosing 40 lbs from all the vomiting. Eventually NOTHING I ate would stay down. I had to go on non-paid medical leave at work because I kept getting sick during my shift. I had to withdraw from college because I fell so far behind. I would go to the ER vomiting blood and they would just send me home! I went to about six different doctors. One doctor basically told me it was in my head. It was really hard to be so sick and have no idea what in the world was making me sick. Finally, I found the right doctor who … [Read more...]

Sylvia’s Fight Like a Girl Story (Gastroparesis)


My name is Sylvia Platz, I'm 18 years old, and have been diagnosed with gastroparesis. On August 26, 2009, at age 14, I was in a horse back riding accident. I immediately felt a sharp, stabbing pain underneath my left breast. For some reason, I threw up right then and there. My mom took me into the emergency room that night because I was in a tremendous amount of pain. There they gave me a CAT Scan, X-Ray, and ran blood work. All of my test results came back normal. I was sent home and told, "nothing is wrong, take this anti inflammatory, you'll be fine." I went home and had something to eat. Half way through my meal I became severely nauseous and vomited. This became a regular part of my day, every day, for four and a half years, five to 12 times a day. All while still suffering from the horrible pain in my side. I had seen multiple doctors and traveled hours (while nauseous) to find a specialist or anyone that would listen to me. With the 98% of the doctor's I visited (85 … [Read more...]

Carole’s Fight Like a Girl Story (Gastroparesis)


My name is Carole Garrison and I am 22 years old. I live in the upstate of South Carolina and six years ago I was hit head on by a drugged driver that forever left me with permanent injuries. I thought it was the toughest battle of my life to come back from that but I was so wrong. In February of 2013, I came down with what we thought was a regular old stomach virus. Unfortunately it didn't go away. I was finally hospitalized after several doctors failed to stop the severe nausea and vomiting I was experiencing. After running every test in the book on me, all they could tell me was what was NOT wrong with me. Finally, I took part in a stomach emptying test which revealed my stomach is no longer functioning as it should. I was diagnosed with a disease called gastroparesis (which means stomach paralysis) and because they could not find the cause it was deemed idiopathic. I suffer daily with this disease. My stomach doesn't digest properly causing my diet mainly consists of … [Read more...]

Suzanne’s Fight Like a Girl Story (Gastroparesis)

Suzanne's Story (Gastroparesis) LR

I am a 41 year old mother of two teenagers. I also have gastroparesis (paralyzed stomach). I have had several abdominal surgeries in the past. The surgeries stemmed from an endoscopic surgery at 26 and a full hysterectomy at 28, which is from the fact that I have horrible endometriosis. I also had both ovaries removed at that time. So, three years ago while working as a pediatric tech and going to college for my pediatric RN degree, I started having problems. I started not being able to eat because of constant vomiting, nausea, and pain. Also, I could only eat a few bites before I would get really sick. Over a year and a half later I was put in the hospital for 11 days in November of 2011. They ran all these tests and I was told it was all in my head. After another seven months and losing 40 pounds, I decided to go to another doctor. I was diagnosed with gastroparesis. I was told that it was bad and would need a feeding tube. In September 2012, I was in the hospital for a month. … [Read more...]

Melissa’s Fight Like a Girl Story (Gastroparesis and Colonic Inertia)

Melissa's Story (Gastoparesis) LR

I have gastroparesis and colonic inertia. I have been battling motility problems since I was 15 years old. My muscles and nerves in my colon do not operate normally, the same with my stomach. My colon was worse. I was on multiple laxatives with no relief. I recently underwent the risk of a total colectomy. I had my large intestine removed. They attached my small bowel to the rectum.Now I can go to the bathroom up to four times a day. This illness is out there, but not a lot of people know about it. There is no cure. We just have to manage with medication. I am happy I went through having my colon removed, even though it is a life changing surgery Melissa T Wisconsin Submitted 6-20-2013 The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice. … [Read more...]

Melissa’s Fight Like a Girl Story (Gastroparesis and Colonic Dysmotility)

Gastroparesis Stories

In high school I started having digestive issues. I have gastroparesis. It is a delay in the stomach emptying process and causes people to throw up food and feel nauseated. Now I have a digestive motility problem in which my colon is not working. It's called colonic dysmotility. I am on many laxatives, but they do not always help. My belly gets very distended. I am in the ER often for pain due to the bloating. Many nurses and other people ask me if I am pregnant when I have a flare up. I had a colon marker test and it was abnormal. I am now waiting on the colon surgeon to determine if I need to have parts of my colon removed. No one understands this. I look healthy on the outside, but in reality my energy level is down most days, my digestive tract is not feeling good, I'm nauseated, and I am constipated from my colon not functioning the way it should. People ask me why I don’t eat lunch. It is because you come to the point where you want to eat as little as possible since food gets … [Read more...]