Fibromyalgia Stories

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Marcia’s Fight Like a Girl Story (Fibromyalgia)

by 7 Comments
Nov
30
2011
Marcia's Story (Fibromyalgia) LR

I always felt like I was in pain. My muscles and bones hurt. I would go from doctor to doctor - all telling me that there was nothing wrong with me. I was really getting frustrated. I knew that there was something wrong with me and that I wasn't just crazy. Finally, when I was 28, I found a doctor who listened to me and then he told me that I had Fibromyalgia. Finally, somebody believed that there was something wrong with me. It can really get frustrating when you know that there is something wrong with you and nobody believes you. You really feel like you are crazy and that you're imagining things. Marcia South Carolina Submitted 8-31-11 The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice. … [Read more...]

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Tammy’s Fight Like a Girl Story (Fibromyalgia)

by 8 Comments
Aug
10
2011
Tammy's Story (Fibromyalgia)

Hi, I'm 46, soon to be 47 on July 31. I was battling massive pain throughout my body and saw many doctors in 2003 and 2004. Finally, I found out I have Fibromyalgia. I was taken off work in 2003 and filed for disability.  I fought until I finally got a Lawyer in 2008. I won my case in 2009. Fighting this disease is hard but I do what I can. In 2010, on April 25th, I had gastric bypass. Now in June 2011 I am down 160 lbs. From meds and just unable to get around, my weight had gotten up to 402. Wow, what a change! I still have Fibromyalgia but it’s easier to get around, when I can. I just take one day at a time and pray every day that we will get cures for these diseases. We can go to the moon so what's the deal. God Bless all and keep the faith!!! FIGHT LIKE A GIRL!!! Just as it says.. Tammy Arizona Submitted 6-16-11 The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be … [Read more...]

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Sarah’s Fight Like a Girl Story (Lupus, Fibromyalgia)

by 15 Comments
Aug
05
2011
Sarah's Story (Lupus Fibromyalgia)

I don't think I'll ever forget how my diagnoses came about. I thought it was just a routine follow up I was having with my Orthopedic Surgeon concerning my second right shoulder surgery. Then, I mention to my doctor about chronic jaw pain I've been having and how I've already seen a dentist and had my wisdom teeth removed and hoped possibly he could help me. He thought it was odd I had a lot of joint pain at the age of 17 so he decided to run some blood work. My ANA came back positive, so he sent me to see a rheumatologist. My jaw wasn't the only joint where I was experience pain at so they ran some tests and I was diagnosed with Fibromyalgia. Around the same time all this was happening I broke out in a really painful rash on my arms and got sent to a few more doctors. They took a skin culture and the tests came back positive for Discoid Lupus. I was half-way through my senior year of high school and got really sick. Luckily all of my teachers were very understanding and helped me … [Read more...]

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Tonya’s Fight Like a Girl Story (Fibromyalgia)

by 8 Comments
Jul
02
2011
Tonya's Personal Story Chronic Pain

My name is Tonya, I am a 42 year old wife and mother of two grown daughters. I have been in pain since I was about 13, when I was diagnosed with Juvenile Rheumatoid Arthritis. At that time it only affected my knees. Then in my early twenties I was tested for lupus and rheumatoid arthritis, all tests were negative. I was told to get more sleep and to live with it. I have struggled with random pains ever since. Although while I was pregnant with my girls the pain did subside. In 2003 my husband was diagnosed and treated for testicular cancer. After 12 weeks of treatment and lots of running around, he was cancer free, and still is. Also, in 2003 I took a hard fall down some slippery steps severely bruising my tail bone. After about three weeks my stomach started to flare and I was diagnosed with IBS which I was told was stress induced. I had to learn how and when to eat to make it thru the day, whether I was staying home or going somewhere. I went to see several more doctors and had … [Read more...]

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Kelli’s Fight Like a Girl Story (Fibromyalgia)

by 24 Comments
Jul
01
2011
Kelli's Story (Fibromyalgia)

My name is Kelli. I am 17 years old and I am a junior in high school. I was diagnosed with fibromyalgia in April 2010. It was blessing as well as a curse. A blessing in the sort that I knew what was wrong with me. A curse in the fact that I know what lies ahead of me. I have been told many times the pain is in my head and I can control how I feel, by doctors, family, friends, etc. I only go to school on half days and sometimes I struggle to do that. I have good days and bad days. Mostly bad days, it seems here lately. I found this Fight Like a Girl Club on Facebook and I have been reading article after article and I have learned so much already. I feel alone in my fight with fibromyalgia, although I have awesome friends and my family to support me - they can only do so much with words. Being 17, I get looked at extremely funny when I tell people what my disease is. I am known as the 'sickly' girl at school and now around my family, too. I really hope I find people on this website to … [Read more...]

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Rachel’s Fight Like A Girl Story (Trigeminal Neuralgia, Endo, Fibro, Celiac, Thyroid Cancer)

by 2 Comments
May
22
2011
Rachel's Story (Trigeminal Neuralgia Endo Fibro Celiac Thyroid Cancer) LR

Here I am, another sleepless night. I like to blame it on all of the anti-convulsants I am on for my trigeminal neuralgia. A facial pain disorder which started about six months ago. The pain is so bad that at times I end up in the ER begging for pain relief. My face hurts so bad that I can't function. This is the newest ailment in my bag of conditions. It all started with endometriosis when I was a teenager then, osteoarthritis, celiac disease and fibromyalgia. Then right after I got married, at age 30 I developed thyroid cancer. At the same time I found out I had hashimotos thyroiditis, an autoimmune disease destroying my thyroid. I had my thyroid removed and went through radioactive iodine treatment. That was a couple years ago and my scans for the disease have been clean ever since. I struggle everyday with pain from the arthritis, the fibromyalgia and the trigeminal neuralgia. I have to keep gluten out of my diet for the celiac disease and still have a lot of bowel … [Read more...]

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