Epilepsy Stories

Hi everybody! My name is Truly. I was diagnosed with epilepsy in 2008. I am now 20 years old and I still battle with it. My first episode was the worst feeling. I was on an airplane coming home from visiting my sister in Pennsylvania. I don’t like flying in the first place, so I was extremely nervous. The whole day I was kind of in a fog. I didn’t know what gate I needed to go to or even what seat I was assigned to. I finally got to my assigned seat after going person to person asking where I needed to go. As soon as I was all seated and situated I remember putting my headphones in and the flight attendant telling me I need to wait to turn my ipod on. Then when she walked away I looked out the window to see nothing but grey smoke - it was really just my imagination. After a long flight of me remembering nothing, I was suddenly being woken up by this strange man whom I had never seen before. He was a Dr. and was asking what my name was and trying to get as much information on me … [Read more...]

My name is Amanda and I am 21 years old. I am an epileptic as a result of an injury that I sustained because a man slipped something in my drink on my 21st birthday. I passed out from a bar stool and landed on my face and ever since then I have had seizures. If I had hit my head just half  an inch over I would have died from hitting my temple. At first it was very hard to accept it and I tried to get over the fact that someone would do that to me. I essentially locked myself up in my room and never left my house and didn’t eat. I’ve had to switch medications three times now and if you’re an epileptic, you understand how hard it is to adjust to the medicines. When I dated the first man since I was diagnosed with epilepsy, I ended up miscarrying his child in which he denied it being his and called me horrible names and told me to go to hell. My baby was 5 weeks and 3 days old. One day I was playing with my three year old nephew and suddenly something just snapped inside of … [Read more...]

It was a school morning. I woke up around 6:30 am and began to go about my routine. But as I ventured in to the kitchen for my morning cigarette I, according to my mother who was sitting at the kitchen table, collapsed right in the middle of the room. I don’t remember what happened after that, actually. All I recall is being in my living room and there being a man asking me if I know who I am and where I was. Then the next minute I was in a hospital bed with tons of needles and wires attatched all over my body. I must have been in and out of it for at least an hour or two. It was like my brain was dead, but my body knew what to do. I remember my father, mother and brother all being gathered around my bed and, when I finally came to, I heard my father say to me very calmly "you had a seizure and you hit your head on the kitchen floor. Mom called for help and you're in the hospital. You have a small concussion but you will be able to come home with us." After being in the hospital for … [Read more...]