Epilepsy Stories

Emily’s Fight Like a Girl Story (Epilepsy)

Sep
01
2011
Purple Ribbon Epilepsy Story

Hi, my name is Emily and I have had epilepsy for 21 years of my life. The first time I had a seizure I was in 2nd grade and had no idea what was happening. As the years went by and I became an adult, the seizures kept on getting worse and worse. It got to the point that I was leaving work every other week on a dime. I also had no short-term memory unless it was something traumatic. I would sit and cry to my mom saying I can't take this anymore. If I had a child there would be no way I would be able to take care of it. I also had doctors tell me 'I don't know how to help you' - until I went to U of M hospital.  They were able to help by doing brain surgery. I had my surgery in October of 2009 and I have been seizure free for a year and a half. This was the best thing that could have happened to me. I now don't leave work, I can drive, and my memory is a lot better. The only thing I lost was some peripheral vision, but I can live with that. I know there are people like me and I … [Read more...]

Melissa’s Story (Epilepsy)

Aug
15
2010
Melissa E 172x179

Once upon a time, I was an average, healthy 26 year-old woman. I had a part-time job at my husband’s office and I enjoyed going shopping by myself or going places with friends. I had a brand-new convertible Beetle that I loved to drive. That all changed when I began having unexplained seizures in 2005. On an out-of-state vacation with my husband, I went to sleep with plans of visiting my grandmother the next morning. Instead, I woke up confused and afraid in a hospital bed. I had my first seizure in the hotel that evening. My husband had no idea what was going on, so he called 911 and the paramedics took me to the nearest hospital. I went into convulsions yet again once I was there. The doctors hypothesized that the seizures were due to the fact that I had been sick, taking various over-the-counter cold medications, and traveling with little sleep. They prescribed Trileptal and recommended that I get back to Florida as soon as possible and see a neurologist once I was … [Read more...]