EDS Stories

Katie’s Fight Like a Girl Story (EDS)

Jul
13
2011
Katie's Story (EDS)

In January of 2010  I was diagnosed with Ehlers Danlos Syndrome after a discouraging and difficult 10 year journey to finally NAME all my strange symptoms. Since then I've been trying to find balance; I am a middle school special education teacher, a wife, a mother, a Christian, a friend, and so much more. So how do I do any of those things well when I can hardly see sometimes off and on throughout the day because of the glares/blind spots/visual aura I get from the vascular symptoms of my EDS. I get migraines that incapacitate me. I dislocate joints running the dishwasher. I nearly pass out when I stand up. My heart races and my temperature is at fever-level because my body can't regulate it. I'm exhausted. I'm tired. And I'm discouraged. But I am thankful. Thankful? Really? Here's what I realized: I have 4 loads of laundry to fold because I have clothes. My house is a mess because my boys have toys. My kitchen is a disaster because we have food to eat … [Read more...]