I was once a very active secondary school and sixth form teacher here in the UK, but that was all before I was hit by Adult Onset Still’s Disease (AOSD) – a very rare autoimmune disease affecting only 1 in a million adults! Now, I'm living a very different life. I’m a full-time wheelchair user with a trainee assistance dog named Rolo. The usual and unusual meds I tried have failed. I’m now awaiting the hope of being accepted onto medical drug trials to try to ease this. Failing means that my only option is a stem cell transplant to try to bring about remission (not an option I really like at all with the fatality odds!) But I haven’t given up! I recently started a non-profit organisation called Still’s R Us, which is untiting fellow Adult and Juvenile Still’s Disease Fighters and raising awareness about this little known disease. Our motto is – Together we are Stronger! And we truly are. So me, I’m Sue and I Fight like a girl! Sue United … [Read more...]
