Addison’s Disease Stories

Mary’s Fight Like a Girl Story (Addison’s Disease)

Oct
21
2013
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I was in middle school when my symptoms started. I would wake up five minutes before the bus would come, then sleep the eight minute ride all the way to school, then sleep through each class, sleep on the bus all the way home, and then sleep all night. I was a straight A student but by mid year I was failing every class. My grandma knew something was wrong and she rushed me to the doctor. He went from head to toe examining me. He said, "I know what is wrong ."  He then had me life flighted to the children's hospital. The doctor said that if I would have slept one more day I wouldn't be here.  I'm now 23 and every time I get sick it goes to my lungs because that is the weakest point in my body. I now have stage one liver failure because of the growth hormone shots. This disease needs more awareness and needs a cure. I will out live my expectancy whether they believe it or not. I will not give up, I will fight to the end because I want there to be a cure. This is my goal, this is … [Read more...]

Lily’s Fight Like a Girl Story as told by her Daughter (Addison’s Disease and Cancer )

Sep
06
2013
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Hello I'm not Lily Kuhn . I am her daughter and I would like to share her story. She was diagnosed with Addison's disease. This illness drains you of energy. She raised my little brother and I since I was about two years old, so she's had this disease for about 19 years. I almost lost my mom when I was two because of this illness but I didn't. She was strong enough to make it through, but I know that everyday is not easy for her. On top of that, last year she had thyroid cancer. She had surgery to have her thyroid removed. Today she is cancer free, thank gosh, but not having a thyroid is very difficult, and everyday she has her struggles.  She may not know that I realize this, but I do. Knowing that she deals with all of this everyday makes her my hero (: I know that these fight like a girl club stories and everyone on here help my mom because they understand what she is going through.  I couldn't appreciate this page anymore for giving my mom hope … [Read more...]

Monica’s Fight Like a Girl Story (Addison’s Disease and Lupus)

Sep
04
2013
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Hi I'm a 43 year old female, and I have been battling so many different symptoms, like pain, lose of energy, rashes, blood levels, anxiety, stress, I could just go on and on. I have a lot of GI problems and 15 months ago I was rushed by ambulance to a nearby hospital. I came to find out that I had an ulcer that perforated on my stomach. I had to have emergency surgery and was fighting for my life. I had been feeling worse with all my other signs and symptoms since that surgery. I landed back in the hospital again after several visits where they finally discovered I have Addison's disease, as well as lupus. My life of a 43 year old that used to do many things like traveling, boating, and working, no longer was the same. My Addison's (adrenal insufficiency) has caused me many problems as well as my lupus. Taking so many medications has its side effects as well. Addison's needs to get more awareness like every other disease. Us women, younger women, and children need to fight this … [Read more...]

Helen’s Fight Like a Girl Story (Addison’s Disease)

Oct
04
2011
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I had been ill for about 8 months and gradually getting worse. The doctors just thought I had a thyroid problem and gave me medication for that. In the end, I could hardly eat, got a strange tan, and then I went on holiday in May this year where I got very ill with vomiting, feeling very cold when it was 90 degrees outside, and having bad back pain. I was very dehydrated and could hardly walk by the time we arrived back in England. My husband took me to A and E the following morning. Luckily, the doctors there were really good and diagnosed my condition quickly which I later found out was adrenal failure, otherwise known as Addison's Disease - which is a life threatening illness. I was so lucky I reached the hospital in time and they injected the needed cortisone steriod into me. Now I have to take the medication daily for the rest of my life as without it I would not be here today. I now realize I need to make the most of every day. Helen England Submitted 7-18-11 The … [Read more...]

Maureen’s Fight Like a Girl Story (Addison’s Disease)

Sep
09
2011
Maureen's Story (Addison's Disease)

Starting in 1985, I had one medical problem after another. Two babies, an ectopic pregnancy, a miscarriage, 9 surgeries for gallbladder, cysts, hysterectomy, a bowel resection…but nothing could have prepared me for what happened to me in 2001. I was so sick I couldn't get out of bed. I was exhausted, weak, I couldn't eat, I was confused all the time, and all I did was sleep. I had debilitating fatigue, muscle weakness, cramping, low potassium, and nausea. The doctors kept attributing all my problems to my Crohn's Disease. But I knew it was something else. After several ER visits due to extreme weakness, I was finally admitted to the hospital by my Gastroenterologist. You know those doctors that tell you they ran every test in the book and didn’t find anything? Well this guy DID run EVERY test in the book, and he solved the big mystery:  SECONDARY ADDISON'S DISEASE I had never heard of it. Adrenal insufficiency? What does that mean? Where are your adrenal glands and what the … [Read more...]