Endometriosis

The Great “What If?”

May
31
2013
imagesmaternity

 Something I have found lately since starting infertility treatments is that I am much more sensitive to peoples    comments now. I completely understand that a lot of people don't really think about what they say before they  say it and of course a lot may not know our situation but lately some of my husbands friends who have kids will tell us "Oh you should wait as long as possible!" or the older ladies at our church that find out how old I am and say "You're so young! You have plenty of time!" I know with complete confidence that none of these people mean anything with their comments or think that a girl in her twenties may not be able to have children. Since starting treatments to try and get pregnant I find myself wondering around Babies R Us daydreaming about the great question, What if? What if against all medical science, God says yes and gives us a baby? What if God in all His great plans says no and I can't get pregnant? These questions come not only when … [Read more...]

Finish Line

Mar
18
2013
Endometriosis Article

I think when you face a chronic disease you always find yourself thinking about "The Finish Line". When the fighting is over, when your done, and when everything is just finished. I feel like I am facing that now. As many of you know I have been trying Lupron shots. In the past three months they have caused me a lot of problems (putting it lightly). As I told my doctor Friday, I feel like I've been through hell and back. I have been struggling with major depression, horrible panic attacks, anger issues and just a deep numb emotional feeling. I have never been so bad emotionally so long. It has been a very rough time for not only me but my family too as they see me going through this and can do nothing to help. I have just sat and cried thinking what is wrong with me? What is happening to me? It is a time that I am gladly leaving behind. My Lupron shots have been stopped and now I am facing with some very big decisions. My doctor told me there was nothing else that can be done. I … [Read more...]

Standing Stronger

Dec
28
2012
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At the end of the year we all look back and reflect upon the year we are leaving behind. The good times we have had, the changes we have went through, and then the bad times and the things we will gladly leave behind. I can personally look back and say from the very start of this year it has been the year with the most change I've ever gone through. At the start of the year I became engaged. Three months later I got married and moved away from everything I'd ever known. Four months later I had my fourth surgery for Endometriosis and two months after that I started Lupron shots. Looking back I can say I have had some amazing, unforgettable days and I can look back and say I have had some really hard times too. When we are having a day where we feel amazing, and we're happy and everything is wonderful we don't want the day to end. When it's been a bad day and things feel like we're falling apart, we can't wait for the day to end and to start over. Either way the day always ends … [Read more...]

Out of Control

Oct
02
2012
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One of the many battles I fight inside myself is control/perfection. I never really thought of myself as a perfectionists or control freak until my husband pointed out how upset I get when my hair doesn't do what I want or the house isn't just so or I burn something while cooking dinner. The more I thought about it and the deeper I dug I realized that the reason I get so upset over the little things is because it's things I can control. It's things I can change and do. When I got down to the bottom of it and was honest with myself I wasn't too happy with the truth. My control freak impulses come from the struggle of trying to make up for the fact I have a disease. That deep down feeling we try so hard to bury. Where we think because we struggle and have an incredibly hard battle with our bodies that somehow we're lacking. In a way we feel like we have to strive to do everything perfect and have everything just so to make up for the days we don't. When I first started dating my … [Read more...]

One More Round

Aug
31
2012
Coping with Chronic Illness

You're in a boxing ring. You're throwing punch after punch. You're winning. You feel that rush that for that moment you're on top. Just when you think you've got your opponent beat, it comes around with a left hook that catches you off guard and completely off balance. Your neck snaps around, your ears are ringing, and everything around you is blurry as the dizziness hits. In what feels like slow motion you fall backwards. You lay there reminding yourself to breathe half wondering if you're still alive. In the distance you hear the ref counting "1...2...3...". He sounds so far away and the lights above seem too bright. You roll to your side struggling to get up, "4...5...6..." You make it back to your feet just before he times you out. You're struggling to breathe. You look across the ring at what you thought you had beat and suddenly it seems so much bigger. You wonder how you'll throw the next punch, how you can keep standing, how you're ever going to win. Over the past few weeks … [Read more...]

Lanah’s Fight Like a Girl Story (Endometriosis)

Jul
27
2012
Lanah's Story (Endometriosis) LR

After everything I’ve been through, I figured that I would share my story with you. My name is Lanah and I have been battling Endometriosis for 14 years and counting. My problems started when I was 11 years old when I went through my first period. My periods would get so bad that I would miss one week of school each month…the week of my period. I would lay on the couch with a hot water bottle and writhe in pain. This lasted for quite some time which also caused problems with school, due to all of my days missed. Also, my immune system has always been very weak, so not only did I have to worry about my periods but I also got ill quite often. I also suffer from Raynaud’s syndrome (which I recently found out can be endo related) and Asthma. I have never experienced a day without pain. As the years went on towards the age of 14, I started experiencing severe gastric problems. I would have what I referred to as “attacks”. My stomach would suddenly start hurting extremely bad. I … [Read more...]

Coping

Jul
03
2012
Endometriosis Article

Have you ever on a bad day just gone into auto pilot? You start having this almost out of body experience where you feel like you’re watching everyone from the other side of a window.  You numb yourself; you can’t feel anymore, you can’t think, you are totally emotionless. This is what is called coping. So what is the difference in when you’re coping and when you’re being strong? I’ve been thinking about this because of a couple of days I’ve had this past month. I’ve had some days where I was in so much pain I just went into auto pilot. I went into that out of body experience because I couldn’t handle the pain I was in. I think I’ve done that so much in the past 5 or so years that it’s almost an automatic reaction that I can’t control anymore. I learned how to do this before I was diagnosed. When I didn’t have a constant supply of pain pills, and an explanation for the pain I was in. When I think of coping this is what I think of. I think of the days … [Read more...]

After Happily Ever After

Jun
03
2012
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Do you ever wonder what happens after happily ever after? Maybe because I’m a writer I think beyond the end of the perfect story. Like what happened to Cinderella after she married Prince Charming? Where did the evil stepmother and step sisters go? Did they all make up? The questions and possibilities are endless. The difference in the fairy tales and real life is that our “evil stepmother and step sisters” don’t go away. (No offence to anyone that is a stepmother or sister, I use those terms figuratively here J ) As I mentioned before I just got married. (Yay!) I married the most amazing guy there is, and had the most perfect fairy tale wedding day imaginable. It was in every single sense of the word perfect. But since this is real life we have to face what happens after our happily ever after, what happens after our most perfect day and what the rest of ever after holds. For us that fight a battle with chronic illness it means that the “evil stepmother” of … [Read more...]

Dependent

Apr
10
2012
Endometriosis

One of the things I've noticed in all that I've read about Endometriosis, whether it be a    medical journal article or a blog from a fellow fighter, is the hard topic of  a struggle for  someone who lives in chronic pain, is the dependency that you develop of prescription pain  pills. On a side note, being dependent and being addicted are two completely different things.  Being addicted is to use, in this case, pain pills in a non-prescribed way. To take them when they're not needed, to use them abusively. To be dependent is to depend on these drugs to function normally - in our case, to take a pain pill to get through a day full of pain. Being a dependent can lead to addiction and if you feel like you may have an addiction I strongly urge you to seek medical help from a doctor you trust. They in turn may send you to a counselor, which I again strongly urge you to do. I've been thinking about this topic lately because of something that happened to me a few weeks ago. A … [Read more...]

Beyond the Sunrise

Mar
01
2012
endomonth

March is Endometriosis awareness month and in honor of that I was thinking about how we, as the fighters, face a month completely dedicated to our battle. Awareness for this disease is not as active as other diseases, such as breast cancer awareness month when the world turns pink. I’m thrilled that there is so much support for the women that face breast cancer. But I would also like to see more support for the ones of us that face Endometriosis. The only way that will happen though is if WE the fighters make people more aware. I know for me that is a hard thing to do. I don’t like telling people I have a disease. Who does? But I think sometimes the difference in what happens when you tell someone you have Endometriosis compared to someone who says they have or have had cancer is the way that it’s portrayed. Not only by the public but by ourselves. I know myself that I feel like when I tell someone “Oh I have Endometriosis.” that what everyone thinks is “Oh that just means … [Read more...]