All my life I have gotten questions about my health. ‘How long will you live?’ ‘Does having a heart condition hurt?’ And my favorite, ‘Can I catch what you have?!’ But as I start down this new journey of getting a heart and lung transplant – I am getting more …

The latest buzz on the internet is a new television show called Red Band Society. I’ve read a few reviews of the show that were written by chronically or terminally ill teens who had watched the pilot. Their reviews made me worried that chronic or terminally illnesses wouldn’t be portrayed …

Hey guys, I know I haven’t posted in a while and I am so sorry! I have been having some health problems lately. One being my memory loss. I can’t even remember whether or not I have taken my pills and that has never been a problem for me! It’s …

Hi everyone, Sorry I haven’t updated lately! I had to have the battery of my pacemaker/defibulator replaced and there were a lot of complications that came with it. Once they had put me under with sedation, I had a huge asthma attack that lasted for 3 to 4 hours. And …

I have heard a lot of comments throughout my 19 years of living with a Congenital Heart Defect and life threatening lung disease called Pulmonary Hypertension. Many of which have had to do with my scar or the way my voice sounds. A few times in elementary and middle school; …