Victoria’s Fight Like a Girl Story (PCOS and Endometriosis)

Aug
14
2013

Victoria's PCOS Story When I was eight years old I got my first period. I had a lot of cramps that used to put me in the hospital. My mother thought I was too young to see a gyno so I didn’t see one. My mother picked my doctor when I was 16 and I hated her so much. She told me just to take birth control and I’d stop being in pain. When I was 18 I told her I wanted to know why I’ve been in so much pain for ten years. She did exploratory surgery and she told me I was fine. I thought maybe the pain was in my head. I got pregnant shortly after and all my pain disappeared. I felt great for the first time in so long.

After I had my daughter I moved in with her father. I started having pains again. I had a hard time getting out of bed every time I got my period. I got a new gyno and she told me I was fine. I got fed up with it and switched again. This time a doctor told me I have PCOS and that I’ve had it for a very long time, that’s why it hurts so much. Birth control would help control it, she took a blood test and a pee test. She told me I was insulin resistant and a pre-diabetic. I started a diet for it, hoping I’d feel better. Four weeks later I ended up in the ER for really bad pelvic pains and uncontrollable bleeding. The doctor looked me in the eye and told me I was six weeks pregnant and not to plan for anything. A cyst popped near his head and he had a brain bleed. I waited to miscarry but he wouldn’t come out. I was 14 weeks when a doctor had to take him out of me. He had no heartbeat, he stopped growing, he was gone. I then looked for a specialist in PCOS, I didn’t want to feel that type of emotional pain again.

When I first met the specialist she wanted to give me another Lap surgery. After she gave me one she told me I had endometriosis and PCOS. It wasn’t too big yet and she burned what she could see, but it will grow back. Finally, after 14 years, I know the answer (I’m 22). She also told me I need to see two other doctors (bladder and colon) because there might be something wrong with them too because of the endo. I’m on a waiting list to see the doctors but I hope to hear from them soon.

Victoria
Massachusetts
Submitted 08/13/2013

The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.

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Comments

  1. Christie Medina says:

    Victoria, wow your story sounds so familiar. i also suffer from PCOS and on the 24 i will be having a hysterectomy. my only child will be 18 in January. i have lost one before him and two after him . i will be 39 this year. i feel your pain! i know how you feel. keep fighting!!! i have found my strength in God, through him all is possible. God will not let you go through this alone. Bless you and your family .

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