I am 18 years old and was diagnosed with endometriosis a little over three years ago. I have always had terrible menstrual cycles, hardly being able to get out of bed because the cramps were so bad. In November of 2008, out of nowhere, I got this terrible pain in my lower left side. It felt like whatever organ was there was going to burst. So my mom took me into the ER and they did all the typical tests and finally decided to admit me. I was in the hospital for two weeks feeling hopeless because they couldn’t figure out what was causing the pain. The nurses came in my room in the middle of the night to give me morphine just to stay on top of it. The doctors started saying in may be “psychosomatic” which is just a scientific term for telling me I’m crazy. Finally they decided to do exploratory surgery and found the endo.
After they diagnosed me, they put me on the pill which did absolutely nothing. Then they switched to Depo Provera which helped for a few months then stopped. Finally they put me on Depo Lupron, which pretty much puts you into menopause. This helped take the edge off the pain, but it was still there. The side effects of the Lupron is TERRIBLE. So the hot-flashes, depression, mood swings, all on top of agonizing pain, wasn’t worth it so I stopped getting my shots. I was on Lupron for over two years, when you are only suppposed to be safely on it for 6 months.
Even though I am now diagnosed, during those few months when I wasn’t being treated and was going into the ER nearly everyother day–literally– all they would do is give me more pain meds through my IV and send me home. One doctor didn’t do anything but tell me I was crazy and send me home. One said “Did you try lighting candles and just relaxing?” – like I haven’t tried everything in the book. Anyway, my mom and boyfriend were so mad they practically yanked me out of the bed and dragged me out of there without signing any discharge papers.
After my doctor tried everything there was to try, he referred me to the Pain Rehabilitation Clinic at Mayo in Rochester, MN. They taught us how to deal with pain without taking pain meds and by, instead, using different relaxation techniques and things of that sort. It was amazing and I still, to this day, use the things they taught me there. People still think I’m crazy and that I just like the attention. My dad, especially, doesn’t understand. It is really hard to deal with a disease like this when the people you love don’t understand or take it seriously. This is why I really appreciate these websites and am always glad to find them. (:
I believe that I am strong, I DO NOT let the disease run my life. I run my own life and I do not let it get me down. When I do get down and start to pity myself, “why me? I’m too young” etc. I remember that there are a lot of women out there just like me, I am NOT alone, no matter how alone I may feel. This disease has not weakend me, but made me a stronger woman. (:
The informational content of this article is intended to convey a personal experience and, because every person’s experience is unique, should not be relied upon as a substitute for professional healthcare advice.